@article{Wheeler:2008:Am-J-Ment-Retard:18407719, title = {Perceived quality of life in mothers of children with fragile x syndrome}, author = {A C Wheeler and D G Skinner and D B Bailey}, journal = {American Journal of Mental Retardation}, month = {May}, number = {3}, pages = {159-177}, url = {http://www.hubmed.org/display.cgi?uids=18407719}, volume = {113}, year = {2008}, biburl = {http://www.bibsonomy.org/bibtex/2f1a4fcd01ae4a819d179310a0f5198c8/sarc}, abstract = {A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.}, pmid = {18407719}, doi = {10.1352/0895-8017(2008)113[159:PQOLIM]2.0.CO;2}, keywords = {DD fragile-x mothers } }