%0 Journal Article %1 Jahnsen2004a %A Jahnsen, R. %A Villien, L. %A Egeland, T. %A Stanghelle, J. K. %A Holm, I. %D 2004 %J Clin Rehabil %K Adult; Age Factors; Aged; Cerebral Palsy; Cross-Sectional Studies; Disease Progression; Female; Gait Disorders, Neurologic; Health Surveys; Humans; Locomotion; Male; Middle Retrospective Walking %N 3 %P 309--316 %T Locomotion skills in adults with cerebral palsy. %V 18 %X OBJECTIVES: To investigate self-reported locomotion skills in persons with cerebral palsy (CP) and to investigate variables potentially associated with deterioration of walking skills. DESIGN: Cross-sectional retrospective survey. SETTING AND SUBJECTS: A multidimensional mailed questionnaire was sent to 766 persons with CP, 18 years or over, without intellectual disabilities, living in Norway. MAIN OUTCOME MEASURES: The questionnaire consisted of demographic and diagnostic items, items on locomotion skills, and physical function (SF-36). RESULTS: In total 406 persons, 51\% males and 49\% females from 18 to 72 years (mean 34 years, SD 11 years) with all categories of CP responded. Median age for reported walking debut was 3 years, with a range from 1 to 14 years. In total 216 respondents (53\%) walked without support, 104 persons (25\%) walked with support, 39 persons (10\%) had lost their walking skills, and 47 (12\%) had never been able to walk. Mean level of physical function (SF-36) was 53 out of 100. There were 97 persons (27\%) who reported improvement of walking skills, mainly before 25 years, 102 (28\%) reported no change, and 160 (44\%) reported deterioration, mainly before 35 years of age. Deterioration was significantly associated with older age, delayed walking debut and severe neurological impairment. Self-reported causes of deterioration were pain, fatigue and lack of adapted physical activity. CONCLUSION: Deterioration of locomotion skills is a significant problem in persons with CP from an early age, documenting the need for life-long follow-up. The predictors above should be investigated in further clinical studies, searching for potential causal pathways.

@article{Jahnsen2004a, abstract = {OBJECTIVES: To investigate self-reported locomotion skills in persons with cerebral palsy (CP) and to investigate variables potentially associated with deterioration of walking skills. DESIGN: Cross-sectional retrospective survey. SETTING AND SUBJECTS: A multidimensional mailed questionnaire was sent to 766 persons with CP, 18 years or over, without intellectual disabilities, living in Norway. MAIN OUTCOME MEASURES: The questionnaire consisted of demographic and diagnostic items, items on locomotion skills, and physical function (SF-36). RESULTS: In total 406 persons, 51\% males and 49\% females from 18 to 72 years (mean 34 years, SD 11 years) with all categories of CP responded. Median age for reported walking debut was 3 years, with a range from 1 to 14 years. In total 216 respondents (53\%) walked without support, 104 persons (25\%) walked with support, 39 persons (10\%) had lost their walking skills, and 47 (12\%) had never been able to walk. Mean level of physical function (SF-36) was 53 out of 100. There were 97 persons (27\%) who reported improvement of walking skills, mainly before 25 years, 102 (28\%) reported no change, and 160 (44\%) reported deterioration, mainly before 35 years of age. Deterioration was significantly associated with older age, delayed walking debut and severe neurological impairment. Self-reported causes of deterioration were pain, fatigue and lack of adapted physical activity. CONCLUSION: Deterioration of locomotion skills is a significant problem in persons with CP from an early age, documenting the need for life-long follow-up. The predictors above should be investigated in further clinical studies, searching for potential causal pathways.}, added-at = {2014-07-19T20:30:22.000+0200}, author = {Jahnsen, R. and Villien, L. and Egeland, T. and Stanghelle, J. K. and Holm, I.}, biburl = {https://www.bibsonomy.org/bibtex/211ef4777ec24a902848748fb5b228532/ar0berts}, groups = {public}, interhash = {962cfd3efafcae0164946eb2b8188a94}, intrahash = {11ef4777ec24a902848748fb5b228532}, journal = {Clin Rehabil}, keywords = {Adult; Age Factors; Aged; Cerebral Palsy; Cross-Sectional Studies; Disease Progression; Female; Gait Disorders, Neurologic; Health Surveys; Humans; Locomotion; Male; Middle Retrospective Walking}, month = May, number = 3, pages = {309--316}, pmid = {15137562}, timestamp = {2014-07-19T20:30:22.000+0200}, title = {Locomotion skills in adults with cerebral palsy.}, username = {ar0berts}, volume = 18, year = 2004 }