In his Comment in The Lancet Psychiatry, Robert Howard1 bravely shared his personal questions on the diagnostic uncertainty of some dementia advocates, and I suspect others might be similarly perplexed. I would like to provide some personal observations from the USA to narrow the gap between the purely medical model of dementia and the lived experience of Persons with Dementia. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
This exploratory study aimed to increase understanding of the experiences of families of people with intellectual disabilities when noticing and raising concerns in services. A qualitative design was employed. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
There is little research that specifically relates to fathers of adults with a learning disability despite the social expectation that fathers will provide a supportive role over the lifespan. To read the full article, log in using your SSSFT NHS OpenAthens details.
The aim was to quantify caregiver distress among informal caregivers of individuals with schizophrenia or schizoaffective disorder and identify its correlates. Login at top right hand side of page using your SSSFT NHS OpenAthens for full text.
Open access. Capacity legislation in the UK allows substitute decision-making for adults lacking capacity. Research has explored the experiences of such adults and their carers in relation to the Adults with Incapacity (Scotland) Act 2000, and the Mental Capacity Act 2005 in England and Wales. A systematic review of the relevant research was performed using a framework method.
Open access. To assess the patients' most influential concerns regarding long-acting injectable antipsychotics (LAIs) and mental health professionals' preconceptions about these concerns. For both groups, to assess the level of knowledge about LAIs. This cross-sectional study used semi-structured interviews of patients with schizophrenia or schizoaffective disorder (n = 164), nurses (n = 43) and physicians (n = 20).
just a phenomenon embraced by the young—31% of all seniors are on Facebook.2 With growing engagement across demographics, social media networks offer new platforms of digital interaction at a scale that is hard to comprehend—313 million active Twitter users sending half a billion tweets and 1.9 billion Facebook accounts uploading 350 million photos every day. SnapChat has created some of the country's youngest billionaires. All these activities, driven by the public's desire to curate and share life experiences, provide new opportunities to observe and understand lived reality in greater detail and closer to real time than ever before. To read the full article, log in using your NHS OpenAthens details.
Obsessive-compulsive disorder (OCD) is a condition which can have major effects on the life of both the sufferer and their family members. Previous research has shown that the impact of illness on family members is related to their conceptualisation of the illness. In the present study we used qualitative methods to explore illness perceptions in family members of people with OCD.
The validity and clinical utility of psychiatric diagnostic systems has been questioned by both service users and clinicians, as not all aspects reflect their lived experience or are user friendly. This is critical as evidence suggests that diagnosis can impact service user experience, identity, service use and outcomes. Feedback and recommendations from service users and clinicians should help minimise the potential for unintended negative consequences and improve the accuracy, validity and clinical utility of the ICD-11.
Open Access Article
The first Carers Café will be held at RJAH on Tuesday 5 September 2017; thereafter, the sessions will be held every second Tuesday of the month.
The café will give carers an opportunity to meet other carers in an informal environment, over a cup of tea or coffee.
Carers who attend the monthly café can also find out about resources available to them, and identify ways they can be supported within the community.
The Government Equalities Office would like to know more about the barriers to returning to work after time out for caring. They have opened a consultation and would like to know more about the experiences of people who want to return to work, employers’ experiences of recruiting these people, and other evidence on the barriers that they face and the support available to them.
Open access. To put into practice and to evaluate an initial dissemination programme for the Strategies for Relatives (START), a clinically and cost-effective manualised intervention for family carers of people with dementia.
22q11.2 deletion syndrome (22q11.2DS) is the most common microdeletion syndrome. However, there is little research examining the effect of this multisystem disorder on the family, particularly siblings. The current study was a phenomenological exploration of sense-making in siblings of a person with 22q11.2DS. To read the full article, log in using your SSSFT NHS OpenAthens details.
At age 21, access to specialised services for youth with profound intellectual disability is reduced. Few studies have focused on parents' views concerning potential solutions to ease the transition to adulthood, and most existing solutions target young adults with less severe intellectual disability. The aim of this study is to propose realistic solutions to meet the needs of young adults with profound intellectual disability and their families during and after the transition to adulthood. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Parents have found the transition to adulthood for their sons or daughters with intellectual and/or developmental disabilities (IDD) particularly challenging. The literature has not examined how parents work together and with others in face of this transition nor has it highlighted parental goals in this process. This study used a perspective based on joint, goal-direct action to describe the projects that Canadian parents engaged in together and with others relative to this transition. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
The efficacy of mindfulness-based interventions (MBIs) for stress and psychological distress in professional caregivers supporting individuals with intellectual or developmental disabilities (IDDs) is reviewed. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
To examine the role of balancing competing needs in the relationship between caregiving demand and caregiving outcomes (caregivers’ role strain and depressive symptoms). To read the full article, log in using your SSSFT NHS OpenAthens details.
Following scandals such as Winterbourne view, Department of Health, (A national response to Winterbourne View Hospital, 2012) seeks changes in challenging behaviour services. A key part of this change is ensuring people with learning disabilities who use challenging behaviour services have more personalised support and their voices are heard. To read the full article, log in using your SSSFT NHS OpenAthens details.