@article{forgo2016legal, added-at = {2017-02-03T14:28:50.000+0100}, author = {Forgó, Nikolaus and Hänold, Stefanie and Nwankwo, Iheanyi and Kobeissi, Dania}, biburl = {https://www.bibsonomy.org/bibtex/2b02fcbd679635a1691e99ac8497e264f/jpfeiffenbring}, interhash = {7091f92991b2424bedb1344e36b2f822}, intrahash = {b02fcbd679635a1691e99ac8497e264f}, journal = {European Journal of Health Law}, keywords = {2016 biomaterial data germany post-mortem protection research}, month = {July}, timestamp = {2017-02-03T14:28:50.000+0100}, title = {Legal Perspectives on Post-mortem Use of Biomaterial and Data for Research: A Focus on the German Situation}, url = {http://booksandjournals.brillonline.com/content/journals/10.1163/15718093-12341415}, year = 2016 } @article{kobeissi2016legal, abstract = {Analyses of biobank informed consent forms show that most of them do not include provisions for post-mortem use of biomaterial and data obtained from a donor who later dies. When these biobanks are confronted with issues of secondary use of these bioresources for research, especially when not completely anonymised, or when genetic research is involved which could reveal not only the identity of the donor, but also those of his biological relatives, they are often confused. Looking at the existing regulatory framework of biobanks, we conclude that no clear guidelines exist on this issue. Although the donor has died, his interests are not completely extinguished. Other interests — those of his biological relatives, researchers, and the public at large may also crop up. Legal reform and clear indications of post-mortem use in the consent document are needed to give donors the opportunity to consider all the implications.}, added-at = {2017-01-03T15:29:56.000+0100}, author = {Hänold, Stefanie and Forgó, Nikolaus and Kobeissi, Dania and Nwankwo, Iheanyi}, biburl = {https://www.bibsonomy.org/bibtex/2474043938357e1c32b3d6b9991a39054/sh}, interhash = {7091f92991b2424bedb1344e36b2f822}, intrahash = {474043938357e1c32b3d6b9991a39054}, journal = {European Journal of Health Law}, keywords = {biobank bioresources consent data framework informed myown post-mortem protection}, timestamp = {2017-01-05T16:39:14.000+0100}, title = {Legal Perspectives on Post-mortem Use of Biomaterial and Data for Research: A Focus on the German Situation }, year = 2016 }