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Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

H. Hebestreit, C. Zeidler, C. Schippers, M. de Zwaan, J. Deckert, P. Heuschmann, C. Krauth, M. Bullinger, A. Berger, M. Berneburg, L. Brandstetter, A. Deibele, J. Dieris-Hirche, H. Graessner, H. Gündel, S. Herpertz, G. Heuft, A. Lapstich, T. Lücke, T. Maisch, C. Mundlos, A. Petermann-Meyer, S. Müller, S. Ott, L. Pfister, J. Quitmann, M. Romanos, F. Rutsch, K. Schaubert, K. Schubert, J. Schulz, S. Schweiger, O. Tüscher, K. Ungethüm, T. Wagner, K. Haas, F. Akkaya, C. Babka, L. Bârlescu, A. Bärsch-Michelmann, A. Bergbreiter, J. Blömeke, L. Böhm, B. Böttger, B. Braun, F. Brinkmann, V. Britz, H. Cario, M. Celiker, M. de Greck, K. Debatin, K. Dillmann-Jehn, M. Ertl, M. Ettinger, J. Eymann, J. Frommer, M. Gabrian, A. Glode, V. Gödecke, C. Grasemann, E. Grauer, H. Greger, A. Haas, M. Haase, L. Haisch, I. Heinrich, M. Held, J. Hennermann, A. Herrmann-Werner, J. Hett, B. Hilbig, L. Holthöfer, C. Imhof, T. Jacob, F. Junne, S. Karl, J. Kassubek, L. Kick, K. Koschitzki, H. Krassort, C. Kratz, K. Kristensen, B. Kropff, J. Kuhn, P. Latzko, T. Loew, D. Lorenz, A. Ludolph, I. dos Santos, T. Meyer, K. Mohnike, M. Monninger, T. Musacchio, A. Nanciu, M. Nießen, M. Nöhre, A. Papagianni, C. Pfeifer-Duck, L. Piduhn, C. Rampp, and others. Orphanet Journal of Rare Diseases, 17 (1): 47 (2022)
DOI: 10.1186/s13023-022-02176-1

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Persistent symptoms and risk factors predicting prolonged time to symptom-free after SARS‑CoV‑2 infection: an analysis of the baseline examination of the German COVIDOM/NAPKON-POP cohortY. Shi, R. Strobl, C. Apfelbacher, T. Bahmer, R. Geisler, P. Heuschmann, A. Horn, H. Hoven, T. Keil, M. Krawczak and 226 other author(s). Infection, 51 (6): 1679--1694 (Dec 1, 2023)Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort studyH. Hebestreit, C. Zeidler, C. Schippers, M. de Zwaan, J. Deckert, P. Heuschmann, C. Krauth, M. Bullinger, A. Berger, M. Berneburg and 91 other author(s). Orphanet Journal of Rare Diseases, 17 (1): 47 (2022)Das Netzwerk Universitätsmedizin: Technisch-organisatorische Ansätze für ForschungsdatenplattformenR. Heyder, H. Kroemer, S. Wiedmann, C. Pley, C. Heyer, P. Heuschmann, J. Vehreschild, D. Krefting, T. Illig, M. Nauck and 34 other author(s). Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, 66 (2): 114-125 (2023)The German National Pandemic Cohort Network (NAPKON): rationale, study design and baseline characteristicsM. Schons, L. Pilgram, J. Reese, M. Stecher, G. Anton, K. Appel, T. Bahmer, A. Bartschke, C. Bellinghausen, I. Bernemann and 65 other author(s). European Journal of Epidemiology, 37 (8): 849--870 (July 2022)The Importance of Being FAIR and FAST - The Clinical Epidemiology and Study Platform of the German Network University Medicine (NUKLEUS).D. Krefting, G. Anton, I. Chaplinskaya-Sobol, S. Hanß, W. Hoffmann, S. Hopff, M. Kraus, R. Lorbeer, B. Lorenz-Depiereux, T. Illig and 6 other author(s). MIE, volume 302 of Studies in Health Technology and Informatics, page 93-97. IOS Press, (2023)Reuse and integration of research data - Experiences of the NAPKON Integration CoreH. Anna-Lena, V. Jörg Janne, W. Martin, H. Wolfgang, I. Thomas, S. Stefan, H. Ralf, A. Gabriele, W. Silke, H. Johannes and 9 other author(s). (2021)Feasibility of SARS-CoV-2 Surveillance Testing Among Children and Childcare Workers at German Day Care Centers: A Nonrandomized Controlled TrialJ. Forster, A. Streng, P. Rudolph, V. Rücker, J. Wallstabe, S. Timme, F. Pietsch, K. Hartmann, M. Krauthausen, J. Schmidt and 14 other author(s). JAMA Network Open, 5 (1): e2142057-e2142057 (2022)Das Netzwerk Universitätsmedizin: Technisch-organisatorische Ansätze für ForschungsdatenplattformenR. Heyder, NUM Coordination Office, H. Kroemer, S. Wiedmann, C. Pley, C. Heyer, P. Heuschmann, J. Vehreschild, D. Krefting, T. Illig and 34 other author(s). Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, 66 (2): 114--125 (Feb 1, 2023)Corona Health - A Study- and Sensor-based Mobile App Platform Exploring Aspects of the COVID-19 Pandemic.F. Beierle, J. Schobel, C. Vogel, J. Allgaier, L. Mulansky, F. Haug, J. Haug, W. Schlee, M. Holfelder, M. Stach and 22 other author(s). CoRR, (2021)The Importance of Being FAIR and FAST – The Clinical Epidemiology and Study Platform of the German Network University Medicine (NUKLEUS)D. Krefting, G. Anton, I. Chaplinskaya-Sobol, S. Hanss, W. Hoffmann, S. Hopff, M. Kraus, R. Lorbeer, B. Lorenz-Depiereux, T. Illig and 6 other author(s). IOS Press, (May 2023)

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Rudolf Heuschmann

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