BibSonomy bookmarks for /user/kclmel/cancerhttps://www.bibsonomy.org/user/kclmel/cancerBibSonomy RSS Feed for /user/kclmel/cancerHFEA, Choices and boundariesHFEA, Preimplantation genetic diagnosis (PGD) and lower penetrance cancer conditions (2006),http://www.hfea.gov.uk/cps/rde/xchg/SID-3F57D79B-9129F1E3/hfea/hs.xsl/489.htmlkclmel2017-08-16T13:17:20+02:00UK HFEA reproduction medical_law PGD Dying Cancer Genetics <span itemprop="description">HFEA, Preimplantation genetic diagnosis (PGD) and lower penetrance cancer conditions (2006),</span>Cancer Research UKhttp://www.cancerresearchuk.org/kclmel2017-08-16T13:17:20+02:00Cancer Medicine UK <a itemprop="url" data-versiondate="2017-08-16T13:17:20+02:00" href="http://www.cancerresearchuk.org/" rel="nofollow" class="description-link">http://www.cancerresearchuk.org/</a>American Cancer Society :: Information and Resources for Cancer ...http://www.cancer.org/kclmel2017-08-16T13:17:20+02:00Cancer Medicine US <a itemprop="url" data-versiondate="2017-08-16T13:17:20+02:00" href="http://www.cancer.org/" rel="nofollow" class="description-link">http://www.cancer.org/</a>Comprehensive Cancer Information - National Cancer Institutehttp://www.cancer.gov/kclmel2017-08-16T13:17:20+02:00Medicine Government Health Cancer US <a itemprop="url" data-versiondate="2017-08-16T13:17:20+02:00" href="http://www.cancer.gov/" rel="nofollow" class="description-link">http://www.cancer.gov/</a>Teenager insists on her right to die with dignityA terminally ill teenager has won a legal battle against a hospital's attempt to force her to have a life-saving heart transplant against her will.http://www.guardian.co.uk/society/2008/nov/11/health-childprotectionkclmel2017-08-16T13:17:19+02:00Dying Cancer Children Capacity <span itemprop="description">A terminally ill teenager has won a legal battle against a hospital's attempt to force her to have a life-saving heart transplant against her will.</span>Hannah's choiceHannah Jones has refused the heart transplant that could save her life. But is a 13-year-old too young to make that decision? Or is she the only person who can?http://www.guardian.co.uk/society/2008/nov/12/health-child-protectionkclmel2017-08-16T13:17:19+02:00Children Dying UK Capacity Cancer <span itemprop="description">Hannah Jones has refused the heart transplant that could save her life. But is a 13-year-old too young to make that decision? Or is she the only person who can?</span>This boy's life: Fighting Cancer with words - Features, Health & Families - The IndependentWhen Jamie Ross was just 19, he was diagnosed with Hodgkin's disease. His response? A darkly humorous blog describing the tribulations and indignities faced by a young man with a serious illnesshttp://www.independent.co.uk/life-style/health-and-families/features/this-boys-life-fighting-cancer-with-words-1656847.htmlkclmel2017-08-16T13:17:18+02:00Cancer Blogs UK <span itemprop="description">When Jamie Ross was just 19, he was diagnosed with Hodgkin's disease. His response? A darkly humorous blog describing the tribulations and indignities faced by a young man with a serious illness</span>Women denied cancer drug that could extend life | Society | The GuardianThe National Institute for Health and Clinical Excellence proposes to reject a breast cancer drug despite its own rule changes on end-of-life treatments Wednesday 21 October 2009 18.11 BST A drug which can give women with advanced breast cancer extra weeks or months of life has been turned down by a government watchdog body for use in the NHS. The National Institute for Health and Clinical Excellence (Nice) says it proposes to reject Tyverb (lapatinib) in spite of changes in the rules brought in specifically to allow people at the end of their lives to have the chance of new and often expensive treatments. Tyverb is the only drug licensed for women with advanced breast cancer whose tumours test positive for a protein called HER2 and for whom Herceptin, a Nice-approved drug, is no longer working. In much of the rest of Europe, Tyverb is then given, in combination with a standard chemotherapy drug called capecitabine.http://www.guardian.co.uk/lifeandstyle/2009/oct/21/women-denied-cancer-drugkclmel2017-08-16T13:17:17+02:00resource_allocation UK Cancer NHS news <span itemprop="description">The National Institute for Health and Clinical Excellence proposes to reject a breast cancer drug despite its own rule changes on end-of-life treatments Wednesday 21 October 2009 18.11 BST A drug which can give women with advanced breast cancer extra weeks or months of life has been turned down by a government watchdog body for use in the NHS. The National Institute for Health and Clinical Excellence (Nice) says it proposes to reject Tyverb (lapatinib) in spite of changes in the rules brought in specifically to allow people at the end of their lives to have the chance of new and often expensive treatments. Tyverb is the only drug licensed for women with advanced breast cancer whose tumours test positive for a protein called HER2 and for whom Herceptin, a Nice-approved drug, is no longer working. In much of the rest of Europe, Tyverb is then given, in combination with a standard chemotherapy drug called capecitabine.</span>BBC NEWS | Health | Plans for 'right' to private careHospital patients in England will get the legal right to be seen privately if they face NHS delays. Hospitals have to start treating patients within 18 weeks of referral - or two weeks in the case of cancer. But ministers will now give patients a legal right to private care - or treatment at another NHS centre if so desired - if this does not happen. The Tories, who would scrap waiting time targets, said it was an "unaffordable and uncosted" pledge.http://news.bbc.co.uk/1/hi/health/8351409.stmkclmel2017-08-16T13:17:16+02:00resource_allocation NHS PrivateMedicine UK news Cancer NHSConstitution <span itemprop="description">Hospital patients in England will get the legal right to be seen privately if they face NHS delays. Hospitals have to start treating patients within 18 weeks of referral - or two weeks in the case of cancer. But ministers will now give patients a legal right to private care - or treatment at another NHS centre if so desired - if this does not happen. The Tories, who would scrap waiting time targets, said it was an "unaffordable and uncosted" pledge.</span>Top-up Payments for Expensive Cancer Drugs: Rationing, Fairness and the NHS. Emily Jackson. 2010; Modern Law Review - Wiley InterScienceThis article examines the implications for patient care, and for the future of rationing within the NHS, of the recent decision to permit NHS patients to supplement their care by paying for medicines — mainly expensive new cancer drugs — which are not available within the NHS. The starting point is the recommendations of the Richards' Report and their implementation through new guidance issued by the DoH and NICE. Practical challenges arise from the insistence upon the 'separate' delivery of self-funded medicines, and more flexible cost-effectiveness thresholds for end of life medicines may have repercussions for other patients. While undoubtedly part of the trend towards explicit rationing, top-up fees might also represent a significant step towards regarding the NHS as a core, basic service. Finally, the issue of top-up fees is located within the broader context of current cancer research priorities and persisting health inequalities.http://www3.interscience.wiley.com/journal/123424761/abstractkclmel2017-08-16T13:17:15+02:00Access resource_allocation NHS UK articles medical_law Medication Cancer <span itemprop="description">This article examines the implications for patient care, and for the future of rationing within the NHS, of the recent decision to permit NHS patients to supplement their care by paying for medicines — mainly expensive new cancer drugs — which are not available within the NHS. The starting point is the recommendations of the Richards' Report and their implementation through new guidance issued by the DoH and NICE. Practical challenges arise from the insistence upon the 'separate' delivery of self-funded medicines, and more flexible cost-effectiveness thresholds for end of life medicines may have repercussions for other patients. While undoubtedly part of the trend towards explicit rationing, top-up fees might also represent a significant step towards regarding the NHS as a core, basic service. Finally, the issue of top-up fees is located within the broader context of current cancer research priorities and persisting health inequalities.</span>Cancer patient forced by judge to have surgery - TelegraphDoctors will be allowed forcibly to sedate the 55-year-old woman in her home and take her to hospital for surgery. She could be forced to remain on a ward afterwards. The case has sparked an intense ethical and legal debate. Experts questioned whether lawyers and doctors should be able to override the wishes of patients and whether force was ever justified in providing medical care.http://www.telegraph.co.uk/health/healthnews/7769243/Cancer-patient-forced-by-judge-to-have-surgery.htmlkclmel2017-08-16T13:17:15+02:00Refusal Consent MCA Capacity Best_Interests UK news judgments Disability medical_law Cancer <span itemprop="description">Doctors will be allowed forcibly to sedate the 55-year-old woman in her home and take her to hospital for surgery. She could be forced to remain on a ward afterwards. The case has sparked an intense ethical and legal debate. Experts questioned whether lawyers and doctors should be able to override the wishes of patients and whether force was ever justified in providing medical care.</span>BBC News - Hospital phobia woman ordered to have surgeryA cancer patient who has a phobia of hospitals should be forced to undergo a life-saving operation if necessary, a High Court judge has ruled. Sir Nicholas Wall, sitting at the Court of Protection, ruled doctors could forcibly sedate the 55-year-old woman - referred to as PS. PS lacked the capacity to make decisions about her health, he said. Doctors at her NHS Foundation trust had argued PS would die if her ovaries and fallopian tubes were not removed. Evidence presented to Sir Nicholas, head of the High Court Family Division, said PS was diagnosed with uterine cancer last year.http://news.bbc.co.uk/1/hi/uk/8708115.stmkclmel2017-08-16T13:17:15+02:00Refusal Consent MCA Capacity Best_Interests UK news judgments Disability medical_law Cancer <span itemprop="description">A cancer patient who has a phobia of hospitals should be forced to undergo a life-saving operation if necessary, a High Court judge has ruled. Sir Nicholas Wall, sitting at the Court of Protection, ruled doctors could forcibly sedate the 55-year-old woman - referred to as PS. PS lacked the capacity to make decisions about her health, he said. Doctors at her NHS Foundation trust had argued PS would die if her ovaries and fallopian tubes were not removed. Evidence presented to Sir Nicholas, head of the High Court Family Division, said PS was diagnosed with uterine cancer last year.</span>BBC News - NICE confirms no NHS funding for cancer drug AvastinThe National Institute for Health and Clinical Excellence (NICE) has confirmed there will not be NHS funding in England and Wales for the anti-cancer drug Avastin. It is used to combat advanced bowel cancer and research shows the drug can give an extra six weeks of life. About 6,500 people per year may be eligible for the drug. But the health watchdog argued that at a cost of nearly £21,000 per patient, the drug is just too expensive.http://www.bbc.co.uk/news/health-11736595kclmel2017-08-16T13:17:14+02:00resource_allocation Cancer NHS news medical_law UK <span itemprop="description">The National Institute for Health and Clinical Excellence (NICE) has confirmed there will not be NHS funding in England and Wales for the anti-cancer drug Avastin. It is used to combat advanced bowel cancer and research shows the drug can give an extra six weeks of life. About 6,500 people per year may be eligible for the drug. But the health watchdog argued that at a cost of nearly £21,000 per patient, the drug is just too expensive.</span>Montana Becomes Third U.S. State to Allow Physician Aid in Dying by Kristine KnaplundIn this report, Professor Knaplund discusses the Montana Supreme Court case of Baxter v. State of Montana (2009 MT 449), which ruled on the issue of a doctor's liability in a physician aid in dying (PAD) situation. In this case, the plaintiff was suffering from mutual symptoms related to his terminal lymphocytic leukemia and the chemotheraphy treatments he was receiving for it. Along with several other named plaintiffs, including board-certified physicians and the group Compassion and Choice, Mr. Baxter sued to have the state's homicide statute declared to of the constitutional rights of those who are dying to seek a physician's aid in achieving death.http://papers.ssrn.com/sol3/papers.cfm?abstract_id=1699007kclmel2017-08-16T13:17:14+02:00Montana US Rights PAS Assisted_Suicide Dying Death_Tourism Washington Oregon Cancer Criminal_Justice medical_law articles <span itemprop="description">In this report, Professor Knaplund discusses the Montana Supreme Court case of Baxter v. State of Montana (2009 MT 449), which ruled on the issue of a doctor's liability in a physician aid in dying (PAD) situation. In this case, the plaintiff was suffering from mutual symptoms related to his terminal lymphocytic leukemia and the chemotheraphy treatments he was receiving for it. Along with several other named plaintiffs, including board-certified physicians and the group Compassion and Choice, Mr. Baxter sued to have the state's homicide statute declared to of the constitutional rights of those who are dying to seek a physician's aid in achieving death.</span>Ireland is told to provide legal abortions for women whose lives are at risk -- Dyer 341 -- bmj.comWomen in the Irish Republic will have to be given the means to access legal abortions there if their lives are at risk, the European Court of Human Rights has ruled in a landmark judgment. The ruling, by the grand chamber of the Strasbourg court, can not be appealed and will require Ireland to legislate or otherwise set up a framework to decide whether there is a “real and substantial risk” to a woman’s life if she goes ahead with her pregnancy. The court held that the human rights of a woman with a rare cancer were violated when she was obliged to travel to the United Kingdom for an abortion and awarded her €15 000 (£12 700; $19 800) in compensation.http://www.bmj.com/content/341/bmj.c7277.full?ath_user=kclstty1349&ath_ttok=%3CTRkYb6Mjh8KkUOAyBg%3Ekclmel2017-08-16T13:17:14+02:00Abortion reproduction Cancer Ireland judgments ECHR news Access right_not_to_reproduce right_to_private_and_family_life <span itemprop="description">Women in the Irish Republic will have to be given the means to access legal abortions there if their lives are at risk, the European Court of Human Rights has ruled in a landmark judgment. The ruling, by the grand chamber of the Strasbourg court, can not be appealed and will require Ireland to legislate or otherwise set up a framework to decide whether there is a “real and substantial risk” to a woman’s life if she goes ahead with her pregnancy. The court held that the human rights of a woman with a rare cancer were violated when she was obliged to travel to the United Kingdom for an abortion and awarded her €15 000 (£12 700; $19 800) in compensation.</span>‘How to Die in Oregon,’ About Assisted Suicide, at Sundance - NYTimes.comhttp://www.nytimes.com/2011/01/25/movies/25sundance.html?_r=1&emc=eta1kclmel2017-08-16T13:17:14+02:00Oregon Cancer Dying PAS Film US Vermont news Montana <a itemprop="url" data-versiondate="2017-08-16T13:17:14+02:00" href="http://www.nytimes.com/2011/01/25/movies/25sundance.html?_r=1&emc=eta1" rel="nofollow" class="description-link">http://www.nytimes.com/2011/01/25/movies/25sundance.html?_r=1&emc=eta1</a>Transplant patients given kidneys from donor with cancer | Society | The GuardianAn investigation is under way into how two transplant patients were given kidneys from a donor with a rare and aggressive form of cancer. The incident at the Royal Liverpool University hospital involved organs from a woman who died at another hospital, and was later found to have had a hard-to-identify disease called intravascular B-cell lymphoma. Both patients had been preparing for live transplants from their sisters but accepted the donor kidneys instead. The recipients are now receiving chemotherapy treatment. Although cancer transmission is a known risk of transplantation among clinicians, the case raises questions about guidance to patients and whether sufficient checks are made. One senior ofhttp://www.guardian.co.uk/society/2011/mar/22/transplant-patients-kidneys-donor-cancerkclmel2017-08-16T13:17:14+02:00Organs Cancer Donation NHS UK news Misadventure <span itemprop="description">An investigation is under way into how two transplant patients were given kidneys from a donor with a rare and aggressive form of cancer. The incident at the Royal Liverpool University hospital involved organs from a woman who died at another hospital, and was later found to have had a hard-to-identify disease called intravascular B-cell lymphoma. Both patients had been preparing for live transplants from their sisters but accepted the donor kidneys instead. The recipients are now receiving chemotherapy treatment. Although cancer transmission is a known risk of transplantation among clinicians, the case raises questions about guidance to patients and whether sufficient checks are made. One senior of</span>BBC News - Inquiry launched as transplant patients contract cancerNHS Blood and Transplant associate medical director Professor James Neuberger said transfer of malignancy was a very rare occurance but more organs were likely to carry diseases as donors get older. He admitted the scale of the problem was not known. A research fellow has now been appointed to find out how often infected organs are passed on to patients. Professor Neuberger said his first role was to try and get all the data together from transplant centres and then to work out strategies with clinicians to reduce risk.http://www.bbc.co.uk/news/health-12792136kclmel2017-08-16T13:17:14+02:00Organs Donation Misadventure news UK NHS Cancer <span itemprop="description">NHS Blood and Transplant associate medical director Professor James Neuberger said transfer of malignancy was a very rare occurance but more organs were likely to carry diseases as donors get older. He admitted the scale of the problem was not known. A research fellow has now been appointed to find out how often infected organs are passed on to patients. Professor Neuberger said his first role was to try and get all the data together from transplant centres and then to work out strategies with clinicians to reduce risk.</span>BBC News - Hywel Dda board criticised over patient Henry ClarkA cancer patient who was supposed to receive regular check ups says he was devastated when he was finally seen and told the disease had spread. Retired teacher Henry Clark from Narberth, Pembrokeshire, needed three-monthly check ups at West Wales General Hospital, Carmarthen. But "serious failures" meant he was not seen for more than a year. Hywel Dda Health Board has been criticised for what happened and has apologised.http://www.bbc.co.uk/news/uk-wales-south-west-wales-13931098kclmel2017-08-16T13:17:13+02:00Negligence NHS Wales UK news Cancer medical_law resource_allocation <span itemprop="description">A cancer patient who was supposed to receive regular check ups says he was devastated when he was finally seen and told the disease had spread. Retired teacher Henry Clark from Narberth, Pembrokeshire, needed three-monthly check ups at West Wales General Hospital, Carmarthen. But "serious failures" meant he was not seen for more than a year. Hywel Dda Health Board has been criticised for what happened and has apologised.</span>BBC News - Cancer drug Avastin loses US approvalUS drug regulators have rescinded approval of a breast cancer drug, saying it is not effective enough to justify the risks of taking it. The drug, Avastin, was approved for US use in 2008, but UK officials have also rejected claims that it prolongs life.http://bbc.in/sPMPh1kclmel2017-08-16T13:17:12+02:00Cancer FDA NICE resource_allocation news medical_law medical_ethics Medication <span itemprop="description">US drug regulators have rescinded approval of a breast cancer drug, saying it is not effective enough to justify the risks of taking it. The drug, Avastin, was approved for US use in 2008, but UK officials have also rejected claims that it prolongs life.</span>