The present authors aimed (a) to objectively quantify spontaneous physical activity (PA) in adult patients with Prader–Willi syndrome (PWS) and (b) to evaluate the transferability of a home‐based exercise training programme in these patients.. To read the full article, log in using your MPFT NHS OpenAthens details.
Open access. Care staff supporting people with intellectual disabilities (PWID) report accepting views on PWID's sexual expression, but people with intellectual disabilities report their sexual expression is restricted by care staff.
Research into hospital treatment and care of children with intellectual disabilities is extremely limited, but available literature points to difficulties. Some children have a co‐occurring condition alongside an intellectual disability which requires ongoing treatment, such as a cleft lip/palate. To date, their experiences remain untapped.. To read the full article, log in using your MPFT NHS OpenAthens details.
Health assessment instruments can help to raise awareness among general practitioners of specific health problems in people with intellectual disabilities (PID). The present authors developed a health assessment questionnaire using the cognitive interview technique (CI) to improve the comprehensibility. The utility of this approach to questionnaire development involving PID is assessed.. To read the full article, log in using your MPFT NHS OpenAthens details.
Active Support, now widely adopted by disability support organizations, is difficult to implement. The study aim was to identify the factors associated with good Active Support.. To read the full article, log in using your MPFT NHS OpenAthens details.
Social inclusion of individuals with intellectual and developmental disabilities (IDD) is related to positive mental health and social outcomes; yet, individuals with IDD experience societal barriers that limit opportunities for community participation. Providing opportunities for interactions between individuals with and without IDD through peer mentoring may diminish barriers and improve community inclusion. Guided by the self‐determination theory, the current report describes the development of a peer mentoring programme to promote the natural process of building intrinsic motivation and personal growth through opportunities for individuals without disabilities to socialize with individuals with IDD on a large university campus and throughout the surrounding community.. To read the full article, log in using your MPFT NHS OpenAthens details.
The purpose of this study was to investigate the patterns of objectively measured sedentary behaviour in adults with intellectual disabilities.. To read the full article, log in using your MPFT NHS OpenAthens details.
Antipsychotic medications are used among 19%–58% of adults with intellectual disabilities to manage challenging behaviour against the NICE guideline recommendations. Studies show that it is possible to completely withdraw antipsychotics in about one third of adults with intellectual disabilities and a dose reduction of 50% or more in another third.. To read the full article, log in using your MPFT NHS OpenAthens details.
A common factor in the abuse of people with intellectual disabilities in residential settings has been the failure of care staff and frontline managers to recognise poor practice at an early stage and prevent its development into a culture of abuse. In this context, staff understandings of abuse and poor practice in residential services for people with intellectual disabilities were explored.. To read the full article, log in using your MPFT NHS OpenAthens details.
A particular challenge facing parents of children with intellectual disabilities occurs when their adult children with intellectual disabilities has an interest in pursuing couple relationships. This study explores parents' perceptions regarding the nature of couple relationships, the right of their adult children with intellectual disabilities to pursue such relationships, the difficulties their children encounter and their own role in providing support.. To read the full article, log in using your MPFT NHS OpenAthens details.
Leading learning disabilities research advocate Irene Tuffrey-Wijne uses her role to ‘shout about’ the need to involve service users in healthcare decisions that affect them
Irene Tuffrey-Wijne has made it her life’s mission to campaign on behalf of people with learning disabilities and autism when it comes to end of life care and bereavement. To read the full article, log in using your MPFT NHS OpenAthens details.
This is an important judgement as it further clarifies what is an acceptable care setting. The appearance of the proposed service did not match with the residential area it was located within and was too big - there was a supported living service on the same site. This did not promote integration with the local community.
The mental health and well‐being of individuals can be positively affected by improving facial appearance through orthodontic treatment. However, research is limited on the relationship between facial appearance and self‐concept of individuals with intellectual disabilities.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
The Care Quality Commission’s annual assessment of the state of health and social care in England shows that quality ratings have been maintained overall – but people’s experience of care is determined by whether they can access good care when they need it.
A cross-sectional study examined data from the national census to explore links between learning disability and autism on mental health and poor general health. To read the full article, log in using your MPFT NHS OpenAthens details.
Since the Bradley Review in 2009 initiatives have been developed to support individuals with mental health problems and learning disabilities in the criminal justice system. Despite these initiatives, it was identified that some individuals were being released from local prisons without adequate support. To read the full article, log in using your MPFT NHS OpenAthens details.
Mindfulness is increasingly being recognised as an effective therapeutic intervention for people with a range of health problems and has been adopted in various clinical fields, such as chronic pain management and diabetes care. There is also emerging evidence of its implementation and efficacy in psychological and mental health interventions but, until recently, people with learning disabilities have been overlooked or excluded from psychological therapies. To read the full article, log in using your MPFT NHS OpenAthens details.