The National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications (ELSI) Research Program was established in 1990 as an integral part of the Human Genome Project (HGP) to foster basic and applied research on the ethical, legal and social implications of genetic and genomic research for individuals, families and communities. The ELSI Research Program funds and manages studies, and supports workshops, research consortia and policy conferences related to these topics.
Information about the University of Exeter, United Kingdom, including for prospective students, current students, international students, academic staff, job applicants, business, professionals, community, alumni and the media
Geneforum was established to ensure that the decisions about genetic research and biotechnology are informed by public values. Geneforum's approach is similar to the widely respected and extensively field-tested model of public engagement created by Orego
GeneWatch UK is a not-for-profit group that monitors developments in genetic technologies from a public interest, environmental protection and animal welfare perspective. GeneWatch believes people should have a voice in whether or how these technologies a
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.