%0 Journal Article %1 Waters2007 %A Waters, Elizabeth %A Davis, Elise %A Mackinnon, Andrew %A Boyd, Roslyn %A Graham, H. Kerr %A Lo, Sing Kai %A Wolfe, Rory %A Stevenson, Richard %A Bjornson, Kristie %A Blair, Eve %A Hoare, Peter %A Ravens-Sieberer, Ulrike %A Reddihough, Dinah %D 2007 %J Dev Med Child Neurol %K Cerebral Palsy; Child; Child, Preschool; Female; Humans; Male; Psychometrics; Quality of Life; Questionnaires; Reproducibility Results; Severity Illness Index %N 1 %P 49--55 %R 10.1111/j.1469-8749.2007.0126a.x %T Psychometric properties of the quality of life questionnaire for children with CP. %U http://dx.doi.org/10.1111/j.1469-8749.2007.0126a.x %V 49 %X This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of 205 primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. The children (112 males, 93 females) were sampled across Gross Motor Function Classification System (GMFCS) levels (Level I=18\%, II=28\%, III=14\%, IV=11\%, V=27\%). Primary caregivers also completed other measures of child health (Child Health Questionnaire; CHQ), QOL (KIDSCREEN), and functioning (GMFCS). Internal consistency ranged from 0.74 to 0.92 for primary caregivers and from 0.80 to 0.90 for child self-report. For primary caregivers, 2-week test-retest reliability ranged from 0.76 to 0.89. The validity of the CP QOL is supported by the pattern of correlations between CP QOL-Child scales with the CHQ, KIDSCREEN, and GMFCS. Preliminary statistics suggest that the child self-report questionnaire has acceptable psychometric properties. The questionnaire can be freely accessed at http://www.deakin.edu.ac/hmnbs/chase/cerebralpalsy/cp_qol_home.php.

@article{Waters2007, abstract = {This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of 205 primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. The children (112 males, 93 females) were sampled across Gross Motor Function Classification System (GMFCS) levels (Level I=18\%, II=28\%, III=14\%, IV=11\%, V=27\%). Primary caregivers also completed other measures of child health (Child Health Questionnaire; CHQ), QOL (KIDSCREEN), and functioning (GMFCS). Internal consistency ranged from 0.74 to 0.92 for primary caregivers and from 0.80 to 0.90 for child self-report. For primary caregivers, 2-week test-retest reliability ranged from 0.76 to 0.89. The validity of the CP QOL is supported by the pattern of correlations between CP QOL-Child scales with the CHQ, KIDSCREEN, and GMFCS. Preliminary statistics suggest that the child self-report questionnaire has acceptable psychometric properties. The questionnaire can be freely accessed at http://www.deakin.edu.ac/hmnbs/chase/cerebralpalsy/cp_qol_home.php.}, added-at = {2014-07-19T21:54:13.000+0200}, author = {Waters, Elizabeth and Davis, Elise and Mackinnon, Andrew and Boyd, Roslyn and Graham, H. Kerr and Lo, Sing Kai and Wolfe, Rory and Stevenson, Richard and Bjornson, Kristie and Blair, Eve and Hoare, Peter and Ravens-Sieberer, Ulrike and Reddihough, Dinah}, biburl = {https://www.bibsonomy.org/bibtex/2ba9d0ba15a7ed3a7c1e8877bc880ccda/ar0berts}, doi = {10.1111/j.1469-8749.2007.0126a.x}, groups = {public}, interhash = {6fbe0ed5fc5bb4556ca463d77861627f}, intrahash = {ba9d0ba15a7ed3a7c1e8877bc880ccda}, journal = {Dev Med Child Neurol}, keywords = {Cerebral Palsy; Child; Child, Preschool; Female; Humans; Male; Psychometrics; Quality of Life; Questionnaires; Reproducibility Results; Severity Illness Index}, month = Jan, number = 1, pages = {49--55}, pii = {DMCN0126a}, pmid = {17209977}, timestamp = {2014-07-19T21:54:13.000+0200}, title = {Psychometric properties of the quality of life questionnaire for children with CP.}, url = {http://dx.doi.org/10.1111/j.1469-8749.2007.0126a.x}, username = {ar0berts}, volume = 49, year = 2007 }