This study sought to describe change and stability in health-related quality of life (HRQL) over time in a cross-section of children with cerebral palsy (CP) using the Child Health Questionnaire (CHQ) through repeated surveys of the children's parents/caregivers. A total of 177 children with CP (98 males, 79 females); age range 3 to 18 years (mean age 8 y 6 mo, SD 4 y 2 mo; Gross Motor Function Classification System: Level I 40\%, Level II 14\%, Level III 14\%, Level IV 16\%, and Level V 17\%) were enrolled as a convenience sample from the outpatient clinics at a tertiary-care children's hospital. The main outcome measure was HRQL as determined by the CHQ--Parent Form 50. Parents reported reduced HRQL for their children with CP relative to norms for the CHQ. Although Role--Physical functioning (reflecting how physical impairment interferes with daily activity) declined with time, all other subscales of the CHQ were stable over the course of 1 year. CHQ scores were not measurably affected by common medical interventions. Children with CP have lower CHQ scores than other children that are, on average, stable over the course of 1 year.
%0 Journal Article
%1 Vargus-Adams2006
%A Vargus-Adams, Jilda
%D 2006
%J Dev Med Child Neurol
%K Adolescent; Cerebral Palsy; Child; Child, Preschool; Cross-Sectional Studies; Demography; Female; Follow-Up Health Status; Humans; Male; Observer Variation; Quality of Life; Questionnaires
%N 5
%P 343--347
%R 10.1017/S0012162206000752
%T Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy.
%U http://dx.doi.org/10.1017/S0012162206000752
%V 48
%X This study sought to describe change and stability in health-related quality of life (HRQL) over time in a cross-section of children with cerebral palsy (CP) using the Child Health Questionnaire (CHQ) through repeated surveys of the children's parents/caregivers. A total of 177 children with CP (98 males, 79 females); age range 3 to 18 years (mean age 8 y 6 mo, SD 4 y 2 mo; Gross Motor Function Classification System: Level I 40\%, Level II 14\%, Level III 14\%, Level IV 16\%, and Level V 17\%) were enrolled as a convenience sample from the outpatient clinics at a tertiary-care children's hospital. The main outcome measure was HRQL as determined by the CHQ--Parent Form 50. Parents reported reduced HRQL for their children with CP relative to norms for the CHQ. Although Role--Physical functioning (reflecting how physical impairment interferes with daily activity) declined with time, all other subscales of the CHQ were stable over the course of 1 year. CHQ scores were not measurably affected by common medical interventions. Children with CP have lower CHQ scores than other children that are, on average, stable over the course of 1 year.
@article{Vargus-Adams2006,
abstract = {This study sought to describe change and stability in health-related quality of life (HRQL) over time in a cross-section of children with cerebral palsy (CP) using the Child Health Questionnaire (CHQ) through repeated surveys of the children's parents/caregivers. A total of 177 children with CP (98 males, 79 females); age range 3 to 18 years (mean age 8 y 6 mo, [SD 4 y 2 mo]; Gross Motor Function Classification System: Level I 40\%, Level II 14\%, Level III 14\%, Level IV 16\%, and Level V 17\%) were enrolled as a convenience sample from the outpatient clinics at a tertiary-care children's hospital. The main outcome measure was HRQL as determined by the CHQ--Parent Form 50. Parents reported reduced HRQL for their children with CP relative to norms for the CHQ. Although Role--Physical functioning (reflecting how physical impairment interferes with daily activity) declined with time, all other subscales of the CHQ were stable over the course of 1 year. CHQ scores were not measurably affected by common medical interventions. Children with CP have lower CHQ scores than other children that are, on average, stable over the course of 1 year.},
added-at = {2014-07-19T21:50:46.000+0200},
author = {Vargus-Adams, Jilda},
biburl = {https://www.bibsonomy.org/bibtex/2dfeea25362a6396cb374dda573f8665d/ar0berts},
doi = {10.1017/S0012162206000752},
groups = {public},
interhash = {e69f82a123fab8a077aa1d05d925b488},
intrahash = {dfeea25362a6396cb374dda573f8665d},
journal = {Dev Med Child Neurol},
keywords = {Adolescent; Cerebral Palsy; Child; Child, Preschool; Cross-Sectional Studies; Demography; Female; Follow-Up Health Status; Humans; Male; Observer Variation; Quality of Life; Questionnaires},
month = May,
number = 5,
pages = {343--347},
pii = {S0012162206000752},
pmid = {16608541},
timestamp = {2014-07-19T21:50:46.000+0200},
title = {Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy.},
url = {http://dx.doi.org/10.1017/S0012162206000752},
username = {ar0berts},
volume = 48,
year = 2006
}