Families’ priorities in life-limiting illness: improving quality with online empowerment -- Harris et al. 101 (3): 247 -- Archives of Disease in Childhood
Objective Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
Intervention MyQuality is an online tool that enables families to choose and monitor parameters they identify as having an impact on their QOL, which aims to improve patient–professional communications and also to enhance patient empowerment within healthcare dialogues.