bookmark

NHS decision to deny drug to boy with severe autism was “fundamentally flawed” | The BMJ


Description

A High Court judge has quashed a “fundamentally flawed” decision by the NHS to refuse funding for a “life changing” drug for a 7 year old boy with severe autism and phenylketonuria (PKU). Mrs Justice Andrews said that NHS England had made “error upon error” in the steps it took in deciding not to fund sapropterin dihydrochloride (Kuvan) for the boy, “SB,” who displays violent and challenging behaviour and whose autism makes the usual dietary treatment for PKU hard to manage. To read the full article, log in using your NHS OpenAthens details.

Preview

Tags

Users

  • @sssftlibrary

Comments and Reviews