Lieve Van den Block, Reginald Deschepper, Johan Bilsen, Nathalie Bossuyt, Viviane Van Casteren and Luc Deliens BMC Public Health 2009, 9:79 doi:10.1186/1471-2458-9-79
Van den Block and colleagues’ paper about end of life decision making and end of life care provides important data to support the debate about physicians’ role in death and dying. Their finding that end-of-life decision making seems to be associated with a high use of palliative care is not surprising, because a protracted dying process with much suffering may be expected to result in both a high use of palliative care and a high frequency of end-of-life decisions, especially for assertive patients with clear preferences concerning the end stage of their lives. More importantly, the study’s results suggest that palliative care is not able to prevent physicians and patients from making medical decisions that hasten death. This may be due to insufficient quality, that should be further improved, but it may also be indicative of principal limitations of palliative care, that apparently cannot address all suffering at the end of life.
Some background information about the context of euthanasia in Belgium is presented, and Belgian law on euthanasia and concerns about the law are discussed. Suggestions as to how to improve the Belgian law and practice of euthanasia are made, and Belgian legislators and medical establishment are urged to reflect and ponder so as to prevent potential abuse. This study is based on a critical review of the literature supplemented by interviews I conducted in Belgium with leading scholars and practitioners in February 2003 and February 2005 about the practice of euthanasia. I first provide background information about euthanasia in Belgium and then discuss its law on euthanasia and voice some concerns, suggesting some constructive ideas to improve the practice of euthanasia.
Johan Bilsen, Robert Vander Stichele, Bert Broeckaert, Freddy Mortier, Luc Deliens, Changes in medical end-of-life practices during the legalization process of euthanasia in Belgium, Social Science & MedicineVolume 65, Issue 4, , August 2007, Pages 803-808. Keywords: Belgium; Euthanasia; Legalization; End-of-life decisions; Health policy
This article examines the reporting requirements in four jurisdictions in which assisted dying (euthanasia and/or assisted suicide) is legally regulated: the Netherlands, Belgium, Oregon and Switzerland. These jurisdictions were chosen because each had a substantial amount of empirical evidence available. We assess the available empirical evidence on reporting and what it tells us about the effectiveness of such requirements in encouraging reporting. We also look at the nature of requirements on regulatory bodies to refer cases not meeting the legal criteria to either prosecutorial or disciplinary authorities. We assess the evidence available on the outcomes of reported cases, including the rate of referral and the ultimate disposition of referred cases.
A Belgian man has chosen to die by euthanasia, after his sex change operation turned him into “a monster”. Nathan Verhelst, 44, was administered legal euthanasia on Monday afternoon, on the grounds of “unbearable psychological suffering”
A public policy think tank, which aims to promote “rational, evidence-based and measured debate” on the subject of assisted dying, has been launched by two members of the House of Lords. Lord Alex Carlile and Baroness Ilora Finlay, co-chairs of Living and Dying Well, have both fervently opposed any change in the law on this issue. Their new organisation is neither “neutral” nor “a campaigning pressure group,” instead, they want to present “hard evidence” to parliament and the public in an objective and informative manner.
A majority of surveyed Flemish physicians appear to accept physician-assisted dying in children under certain circumstances and favour an amendment to the euthanasia law to include minors. The approach favoured is one of assessing decision-making capacity rather than setting arbitrary age limits. These stances, and their connection with actual end-of-life practices, may encourage policy-makers to develop guidelines for medical end-of-life practices in minors that address specific challenges arising in this patient group.
The editorial by Ira Byock (1) commenting on the report from van den Block et al (2) correctly says that only 22 cases of euthanasia or physician-assisted suicide (PAS) occurred (1.3% of all 1690 non-sudden deaths), suggesting that this means these actions ‘occur relatively infrequently’. However, there were a further 26 cases of 'life ending drugs without patient request'. Readers should know that this latter category consists of doctors who answered the same question in the same way as the doctors who are counted as having provided euthanasia or PAS, except that in a subsequent question the doctors indicated that the patient had not asked for euthanasia at the time.