%0 Journal Article %1 Engel2003 %A Engel, Joyce M %A Jensen, Mark P %A Hoffman, Amy J %A Kartin, Deborah %D 2003 %J Arch Phys Med Rehabil %K Activities of Daily Living; Adolescent; Adult; Aged; Cerebral Palsy; Chronic Disease; Disabled Persons; Female; Humans; Male; Middle Pain; Pain Measurement; Patient Satisfaction; Quality Life; Questionnaires; Seve; rity Illness Index %N 8 %P 1125--1128 %T Pain in persons with cerebral palsy: extension and cross validation. %V 84 %X OBJECTIVE: To cross-validate and extend the assessment of pain in persons with cerebral palsy (CP). DESIGN: Standardized in-person interviews. SETTING: University medical clinics and local residential and community housing for persons with developmental disabilities. PARTICIPANTS: One hundred adults with CP. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Measures of pain intensity, pain interference in daily activities, psychologic function, significance of pain problem, and satisfaction with pain treatment. RESULTS: Sixty-seven (67\%) subjects reported 1 or more chronic pain problem(s). Low back, hip, and leg pain were most common. Twenty-four percent reported constant pain; 19\% reported that pain occurred daily. Mean pain intensity +/- standard deviation over the previous week on an 11-point scale (0, no pain; 10, pain as bad as could be) was 4.08+/-2.25. Minor interference (2.55+/-3.03; scale range, 0-10) from pain with routine daily activities was reported. Responses to the Satisfaction with Life Scale (n=63) indicated only moderate life satisfaction (18.44+/-8.34; scale range, 5-35) among those with 1 or more pain problem(s). Responses to the Rand Mental Health Inventory (n=65; mean score, 60.65+/-20.36) revealed relatively high levels of psychologic distress in those with chronic pain. Consumer satisfaction with pain management care varied, with 32.8\% of the subjects reporting dissatisfaction. CONCLUSIONS: The study findings are consistent with earlier findings concerning pain problems in adults with CP and provide further evidence that pain problems may be overlooked and undertreated in this population.

@article{Engel2003, abstract = {OBJECTIVE: To cross-validate and extend the assessment of pain in persons with cerebral palsy (CP). DESIGN: Standardized in-person interviews. SETTING: University medical clinics and local residential and community housing for persons with developmental disabilities. PARTICIPANTS: One hundred adults with CP. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Measures of pain intensity, pain interference in daily activities, psychologic function, significance of pain problem, and satisfaction with pain treatment. RESULTS: Sixty-seven (67\%) subjects reported 1 or more chronic pain problem(s). Low back, hip, and leg pain were most common. Twenty-four percent reported constant pain; 19\% reported that pain occurred daily. Mean pain intensity +/- standard deviation over the previous week on an 11-point scale (0, no pain; 10, pain as bad as could be) was 4.08+/-2.25. Minor interference (2.55+/-3.03; scale range, 0-10) from pain with routine daily activities was reported. Responses to the Satisfaction with Life Scale (n=63) indicated only moderate life satisfaction (18.44+/-8.34; scale range, 5-35) among those with 1 or more pain problem(s). Responses to the Rand Mental Health Inventory (n=65; mean score, 60.65+/-20.36) revealed relatively high levels of psychologic distress in those with chronic pain. Consumer satisfaction with pain management care varied, with 32.8\% of the subjects reporting dissatisfaction. CONCLUSIONS: The study findings are consistent with earlier findings concerning pain problems in adults with CP and provide further evidence that pain problems may be overlooked and undertreated in this population.}, added-at = {2014-07-19T19:25:06.000+0200}, author = {Engel, Joyce M and Jensen, Mark P and Hoffman, Amy J and Kartin, Deborah}, biburl = {https://www.bibsonomy.org/bibtex/24e6d95d17ee2589cd4700c552441b170/ar0berts}, groups = {public}, interhash = {047917ca90784d3f046be6d6638af957}, intrahash = {4e6d95d17ee2589cd4700c552441b170}, journal = {Arch Phys Med Rehabil}, keywords = {Activities of Daily Living; Adolescent; Adult; Aged; Cerebral Palsy; Chronic Disease; Disabled Persons; Female; Humans; Male; Middle Pain; Pain Measurement; Patient Satisfaction; Quality Life; Questionnaires; Seve; rity Illness Index}, month = Aug, number = 8, pages = {1125--1128}, pii = {S0003999303002636}, pmid = {12917849}, timestamp = {2014-07-19T19:25:06.000+0200}, title = {Pain in persons with cerebral palsy: extension and cross validation.}, username = {ar0berts}, volume = 84, year = 2003 }