The aim of the study was to determine whether pediatric patients with cerebral palsy (CP; 24.3\% hemiplegic, 30.4\% diplegic, 38.5\% quadriplegic) can self-report their health-related quality of life (HRQOL) with the Pediatric Quality of Life Inventory Version 4.0 (PedsQL 4.0) Generic Core Scales. The PedsQL was administered to 148 families (84 males, 64 females; mean 10y, SD 3y 9mo, range 5 to 18y) recruited from a children's hospital clinic and state medical therapy clinics. Sixty-nine children (47\%) were able to self-report. Children with CP self-reported a significantly lower HRQOL (mean 65.9) than healthy children (mean 83.8). Children with CP self-reported a similar HRQOL to pediatric cancer patients receiving treatment (mean 68.9). Children diagnosed with quadriplegia (mean 49.4) self-reported more impaired HRQOL than children with diplegia (mean 69.1) and hemiplegia (mean 72.4). Parent-child concordance was lowest for emotional functioning. Providers and parents should obtain the children's HRQOL perceptions whenever possible.
%0 Journal Article
%1 Varni2005
%A Varni, James W
%A Burwinkle, Tasha M
%A Sherman, Sandra A
%A Hanna, Kanela
%A Berrin, Susan J
%A Malcarne, Vanessa L
%A Chambers, Henry G
%D 2005
%J Dev Med Child Neurol
%K Adolescent; Adult; Cerebral Palsy; Child; Child, Preschool; Female; Humans; Male; Neoplasms; Personality Assessment; Psychometrics; Quality of Life; Questionnaires; Reproducibility Results; Sick Role; Sickness Impact Profile
%N 9
%P 592--597
%T Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children.
%V 47
%X The aim of the study was to determine whether pediatric patients with cerebral palsy (CP; 24.3\% hemiplegic, 30.4\% diplegic, 38.5\% quadriplegic) can self-report their health-related quality of life (HRQOL) with the Pediatric Quality of Life Inventory Version 4.0 (PedsQL 4.0) Generic Core Scales. The PedsQL was administered to 148 families (84 males, 64 females; mean 10y, SD 3y 9mo, range 5 to 18y) recruited from a children's hospital clinic and state medical therapy clinics. Sixty-nine children (47\%) were able to self-report. Children with CP self-reported a significantly lower HRQOL (mean 65.9) than healthy children (mean 83.8). Children with CP self-reported a similar HRQOL to pediatric cancer patients receiving treatment (mean 68.9). Children diagnosed with quadriplegia (mean 49.4) self-reported more impaired HRQOL than children with diplegia (mean 69.1) and hemiplegia (mean 72.4). Parent-child concordance was lowest for emotional functioning. Providers and parents should obtain the children's HRQOL perceptions whenever possible.
@article{Varni2005,
abstract = {The aim of the study was to determine whether pediatric patients with cerebral palsy (CP; 24.3\% hemiplegic, 30.4\% diplegic, 38.5\% quadriplegic) can self-report their health-related quality of life (HRQOL) with the Pediatric Quality of Life Inventory Version 4.0 (PedsQL 4.0) Generic Core Scales. The PedsQL was administered to 148 families (84 males, 64 females; mean 10y, SD 3y 9mo, range 5 to 18y) recruited from a children's hospital clinic and state medical therapy clinics. Sixty-nine children (47\%) were able to self-report. Children with CP self-reported a significantly lower HRQOL (mean 65.9) than healthy children (mean 83.8). Children with CP self-reported a similar HRQOL to pediatric cancer patients receiving treatment (mean 68.9). Children diagnosed with quadriplegia (mean 49.4) self-reported more impaired HRQOL than children with diplegia (mean 69.1) and hemiplegia (mean 72.4). Parent-child concordance was lowest for emotional functioning. Providers and parents should obtain the children's HRQOL perceptions whenever possible.},
added-at = {2014-07-19T21:50:48.000+0200},
author = {Varni, James W and Burwinkle, Tasha M and Sherman, Sandra A and Hanna, Kanela and Berrin, Susan J and Malcarne, Vanessa L and Chambers, Henry G},
biburl = {https://www.bibsonomy.org/bibtex/282469bbc3340144e595fcc97691ddd49/ar0berts},
groups = {public},
interhash = {7b3baa092c45ac0a612159b6d0de1e46},
intrahash = {82469bbc3340144e595fcc97691ddd49},
journal = {Dev Med Child Neurol},
keywords = {Adolescent; Adult; Cerebral Palsy; Child; Child, Preschool; Female; Humans; Male; Neoplasms; Personality Assessment; Psychometrics; Quality of Life; Questionnaires; Reproducibility Results; Sick Role; Sickness Impact Profile},
month = Sep,
number = 9,
pages = {592--597},
pmid = {16138665},
timestamp = {2014-07-19T21:50:48.000+0200},
title = {Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children.},
username = {ar0berts},
volume = 47,
year = 2005
}