A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.
%0 Journal Article
%1 Wheeler:2008:Am-J-Ment-Retard:18407719
%A Wheeler, A C
%A Skinner, D G
%A Bailey, D B
%D 2008
%J American Journal of Mental Retardation
%K DD fragile-x mothers
%N 3
%P 159-177
%R 10.1352/0895-8017(2008)113159:PQOLIM2.0.CO;2
%T Perceived quality of life in mothers of children with fragile x syndrome
%U http://www.hubmed.org/display.cgi?uids=18407719
%V 113
%X A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.
@article{Wheeler:2008:Am-J-Ment-Retard:18407719,
abstract = {A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.},
added-at = {2008-04-17T03:03:38.000+0200},
author = {Wheeler, A C and Skinner, D G and Bailey, D B},
biburl = {https://www.bibsonomy.org/bibtex/2f1a4fcd01ae4a819d179310a0f5198c8/sarc},
doi = {10.1352/0895-8017(2008)113[159:PQOLIM]2.0.CO;2},
interhash = {58251f64a60aa31913998984f223609f},
intrahash = {f1a4fcd01ae4a819d179310a0f5198c8},
journal = {American Journal of Mental Retardation},
keywords = {DD fragile-x mothers},
month = May,
number = 3,
pages = {159-177},
pmid = {18407719},
timestamp = {2008-04-17T03:03:38.000+0200},
title = {Perceived quality of life in mothers of children with fragile x syndrome},
url = {http://www.hubmed.org/display.cgi?uids=18407719},
volume = 113,
year = 2008
}