%0 Journal Article %1 Krach2006 %A Krach, L. E. %A Nettleton, A. %A Klempka, B. %D 2006 %J Pediatr Rehabil %K Adolescent; Adult; Baclofen; Cerebral Palsy; Child; Child, Preschool; Evaluation Studies; Female; Humans; Infusion Pumps, Implantable; Injections, Spinal; Male; Motor Activity; Muscle Relaxants, Central; Patient Satisfaction; Retrospective Studies %N 3 %P 210--218 %R 10.1080/13638490500138678 %T Satisfaction of individuals treated long-term with continuous infusion of intrathecal baclofen by implanted programmable pump. %U http://dx.doi.org/10.1080/13638490500138678 %V 9 %X PURPOSE: To investigate the perspective of the individual receiving intrathecal baclofen (ITB) or his/her caregiver concerning its effects and to describe characteristics of those that were satisfied or not satisfied. METHODS: After IRB approval, potential subjects were identified who had undergone ITB pump implantation at least 1 year prior to the study. One hundred subjects/caregivers were interviewed by phone. Interview consisted of a scripted questionnaire to obtain subject/caregiver opinions about changes in function and caregiver assistance, as well as satisfaction with ITB. Medical records were reviewed to collect information including diagnosis, ITB related surgeries and medications. RESULTS: Subjects ranged in age from 5-42 years and 88 had a diagnosis of cerebral palsy. Improvement was noted in the following areas: positioning 69\%, transfers 58\%, dressing 69\% and toileting/hygiene 51\%. Fifty-four per cent reported reduction in startle movements. Sleep was improved in 43\% and comfort in 53\%. Twenty-two subjects experienced 32 events related to the ITB hardware or surgery. Only 12\% indicated they would not choose to undergo the procedure again. DISCUSSION: Generally, subjects and their caregivers were satisfied with the results after ITB pump implantation. A majority reported improvements in positioning, transfers, dressing, toileting/hygiene and comfort.

@article{Krach2006, abstract = {PURPOSE: To investigate the perspective of the individual receiving intrathecal baclofen (ITB) or his/her caregiver concerning its effects and to describe characteristics of those that were satisfied or not satisfied. METHODS: After IRB approval, potential subjects were identified who had undergone ITB pump implantation at least 1 year prior to the study. One hundred subjects/caregivers were interviewed by phone. Interview consisted of a scripted questionnaire to obtain subject/caregiver opinions about changes in function and caregiver assistance, as well as satisfaction with ITB. Medical records were reviewed to collect information including diagnosis, ITB related surgeries and medications. RESULTS: Subjects ranged in age from 5-42 years and 88 had a diagnosis of cerebral palsy. Improvement was noted in the following areas: positioning 69\%, transfers 58\%, dressing 69\% and toileting/hygiene 51\%. Fifty-four per cent reported reduction in startle movements. Sleep was improved in 43\% and comfort in 53\%. Twenty-two subjects experienced 32 events related to the ITB hardware or surgery. Only 12\% indicated they would not choose to undergo the procedure again. DISCUSSION: Generally, subjects and their caregivers were satisfied with the results after ITB pump implantation. A majority reported improvements in positioning, transfers, dressing, toileting/hygiene and comfort.}, added-at = {2014-07-19T20:39:25.000+0200}, author = {Krach, L. E. and Nettleton, A. and Klempka, B.}, biburl = {https://www.bibsonomy.org/bibtex/2fab2e42fe1812075bdf261d0d001a776/ar0berts}, doi = {10.1080/13638490500138678}, groups = {public}, interhash = {40f8e556320350bdc8e38c05efbb8416}, intrahash = {fab2e42fe1812075bdf261d0d001a776}, journal = {Pediatr Rehabil}, keywords = {Adolescent; Adult; Baclofen; Cerebral Palsy; Child; Child, Preschool; Evaluation Studies; Female; Humans; Infusion Pumps, Implantable; Injections, Spinal; Male; Motor Activity; Muscle Relaxants, Central; Patient Satisfaction; Retrospective Studies}, number = 3, pages = {210--218}, pii = {R3270H112510448R}, pmid = {17050399}, timestamp = {2014-07-19T20:39:25.000+0200}, title = {Satisfaction of individuals treated long-term with continuous infusion of intrathecal baclofen by implanted programmable pump.}, url = {http://dx.doi.org/10.1080/13638490500138678}, username = {ar0berts}, volume = 9, year = 2006 }