%0 Journal Article %1 Wheeler:2008:Am-J-Ment-Retard:18407719 %A Wheeler, A C %A Skinner, D G %A Bailey, D B %D 2008 %J American Journal of Mental Retardation %K DD fragile-x mothers %N 3 %P 159-177 %R 10.1352/0895-8017(2008)113159:PQOLIM2.0.CO;2 %T Perceived quality of life in mothers of children with fragile x syndrome %U http://www.hubmed.org/display.cgi?uids=18407719 %V 113 %X A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.

@article{Wheeler:2008:Am-J-Ment-Retard:18407719, abstract = {A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.}, added-at = {2008-04-17T03:03:38.000+0200}, author = {Wheeler, A C and Skinner, D G and Bailey, D B}, biburl = {https://www.bibsonomy.org/bibtex/2f1a4fcd01ae4a819d179310a0f5198c8/sarc}, doi = {10.1352/0895-8017(2008)113[159:PQOLIM]2.0.CO;2}, interhash = {58251f64a60aa31913998984f223609f}, intrahash = {f1a4fcd01ae4a819d179310a0f5198c8}, journal = {American Journal of Mental Retardation}, keywords = {DD fragile-x mothers}, month = May, number = 3, pages = {159-177}, pmid = {18407719}, timestamp = {2008-04-17T03:03:38.000+0200}, title = {Perceived quality of life in mothers of children with fragile x syndrome}, url = {http://www.hubmed.org/display.cgi?uids=18407719}, volume = 113, year = 2008 }