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The International Society for the Study of Vascular Anomalies (ISSVA) ontology., , , , and . J. Web Semant., (2022)De-novo FAIRification via an Electronic Data Capture system by automated transformation of filled electronic Case Report Forms into machine-readable data., , , , , , , , , and 1 other author(s). J. Biomed. Informatics, (2021)Surveyed common data access policies preferences amongst European Reference Networks., , , , , , , , , and 6 other author(s). SWAT4HCLS, volume 3415 of CEUR Workshop Proceedings, page 107-111. CEUR-WS.org, (2023)Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data., , , , , , , , , and 9 other author(s). J. Biomed. Semant., 13 (1): 9 (2022)A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR., , , , , , , , , and 5 other author(s). Data Sci. J., (January 2023)Applying the FAIR Data Principles to the Registry of Vascular Anomalies (VASCA)., , , , , , , , and . dHealth, volume 271 of Studies in Health Technology and Informatics, page 115-116. IOS Press, (2020)