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End‐of‐life care research on people with intellectual disabilities: Challenges for proactive inclusion in an Irish context - Cithambaram - - British Journal of Learning Disabilities - Wiley Online Library


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In recent times, people with intellectual disabilities are increasingly included in research studies; however, their participation in sensitive research such as palliative and end‐of‐life care is less frequent. The reasons for not including people with intellectual disabilities in these kinds of research studies are issues in relation to obtaining consent, difficulty of recruiting, and engaging and collecting relevant information. This paper aimed to provide insight into how people with intellectual disabilities could be proactively included in research which is sensitive to their unique needs.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.

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