The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
Geneforum was established to ensure that the decisions about genetic research and biotechnology are informed by public values. Geneforum's approach is similar to the widely respected and extensively field-tested model of public engagement created by Orego