FERTILITY regulators have triggered a new row over designer babies by allowing doctors to destroy embryos affected by more than 100 genetic conditions, including many illnesses that are not life-threatening. The genetic “defects” that can now be routinely screened out include conditions carried by a number of leading figures, such as Pete Sampras, the tennis champion, and Sergei Rachmaninoff, the Russian concert pianist and composer. In some cases it will mean the elimination of an embryo that has been identified as carrying genetic material inherited from a stricken grandparent, but which may not necessarily develop the same illness. The Human Fertilisation and Embryology Authority (HFEA), has published a list of 116 inherited conditions that fertility clinics can screen out without requiring special permission.
Clinicians and egg donors have signalled their support for a rise in the amount of compensation paid to women who donate eggs to infertile women in the United Kingdom, as the Human Fertilisation and Embryology Authority prepares to launch a public consultation on the subject.
Pilots are to be run in two areas of England to test the feasibility of a national sperm donation service in an effort to tackle the shortage of sperm donors. The Department of Health is to seek bids for the trial runs. Mark Hamilton, the consultant gynaecologist who chaired the working party of the British Fertility Society that recommended a national hub and spoke service last year, said, "We desperately need a national service framework. The closest analogy is the blood service. A very similar system could be put in place for sperm."
UK researchers are working on new medical techniques that could allow women to avoid passing on genetically inherited mitochondrial diseases, to their children. These techniques, which are IVF-based, offer options for affected families. However they are also at the cutting edge, both of science and of ethics. The Human Fertilisation and Embryology Authority (HFEA) has launched this public consultation to gather your views on the social and ethical impact of making these techniques available to patients.
Compensation paid to egg and sperm donors in the United Kingdom could be increased to include a payment for inconvenience, in a bid to tackle an acute shortage of donated gametes. The Human Fertilisation and Embryology Authority (HFEA), which regulates infertility treatment, raises the possibility in a review of its policies on egg and sperm donation launched on 17 January. European law bans payment for donated gametes but allows donors to be compensated for expenses, loss of earnings, and inconvenience. Current HFEA rules allow egg donors to be reimbursed for loss of earnings and expenses, such as travel costs, up to a maximum of £250 (€300; $400). But nothing can be claimed for the physical inconvenience that gamete donors experience, even though egg donation is invasive and sperm donation time consuming.
The UK Human Fertilisation and Embryology Authority (HFEA) is investigating websites that match up sperm donors with women who want to conceive, to see whether they may be breaking the law. The move by the HFEA follows the conviction at Southwark Crown Court in London of Ricky Gage and Nigel Woodforth, who made £250 000 (€295 000; $400 000) from their company Fertility 1st, which couriered sperm from donors to women who were trying to conceive. The pair face a possible jail term when they are sentenced in October. They fell foul of a law that makes the procurement of gametes, including human sperm, illegal without a licence from the HFEA.
This publication is an illustrative text which has been produced to assist the reader. It shows the Human Fertilisation and Embryology Act 1990 as amended by the Human Fertilisation and Embryology Act 2008.
These explanatory notes relate to the Human Fertilisation and Embryology Act 2008 which received Royal Assent on 13 November 2008. They have been prepared by the Department of Health in order to assist the reader of the Act. They do not form part of the Act and have not been endorsed by Parliament.