PURPOSE: To investigate the perspective of the individual receiving intrathecal baclofen (ITB) or his/her caregiver concerning its effects and to describe characteristics of those that were satisfied or not satisfied. METHODS: After IRB approval, potential subjects were identified who had undergone ITB pump implantation at least 1 year prior to the study. One hundred subjects/caregivers were interviewed by phone. Interview consisted of a scripted questionnaire to obtain subject/caregiver opinions about changes in function and caregiver assistance, as well as satisfaction with ITB. Medical records were reviewed to collect information including diagnosis, ITB related surgeries and medications. RESULTS: Subjects ranged in age from 5-42 years and 88 had a diagnosis of cerebral palsy. Improvement was noted in the following areas: positioning 69\%, transfers 58\%, dressing 69\% and toileting/hygiene 51\%. Fifty-four per cent reported reduction in startle movements. Sleep was improved in 43\% and comfort in 53\%. Twenty-two subjects experienced 32 events related to the ITB hardware or surgery. Only 12\% indicated they would not choose to undergo the procedure again. DISCUSSION: Generally, subjects and their caregivers were satisfied with the results after ITB pump implantation. A majority reported improvements in positioning, transfers, dressing, toileting/hygiene and comfort.
%0 Journal Article
%1 Krach2006
%A Krach, L. E.
%A Nettleton, A.
%A Klempka, B.
%D 2006
%J Pediatr Rehabil
%K Adolescent; Adult; Baclofen; Cerebral Palsy; Child; Child, Preschool; Evaluation Studies; Female; Humans; Infusion Pumps, Implantable; Injections, Spinal; Male; Motor Activity; Muscle Relaxants, Central; Patient Satisfaction; Retrospective Studies
%N 3
%P 210--218
%R 10.1080/13638490500138678
%T Satisfaction of individuals treated long-term with continuous infusion of intrathecal baclofen by implanted programmable pump.
%U http://dx.doi.org/10.1080/13638490500138678
%V 9
%X PURPOSE: To investigate the perspective of the individual receiving intrathecal baclofen (ITB) or his/her caregiver concerning its effects and to describe characteristics of those that were satisfied or not satisfied. METHODS: After IRB approval, potential subjects were identified who had undergone ITB pump implantation at least 1 year prior to the study. One hundred subjects/caregivers were interviewed by phone. Interview consisted of a scripted questionnaire to obtain subject/caregiver opinions about changes in function and caregiver assistance, as well as satisfaction with ITB. Medical records were reviewed to collect information including diagnosis, ITB related surgeries and medications. RESULTS: Subjects ranged in age from 5-42 years and 88 had a diagnosis of cerebral palsy. Improvement was noted in the following areas: positioning 69\%, transfers 58\%, dressing 69\% and toileting/hygiene 51\%. Fifty-four per cent reported reduction in startle movements. Sleep was improved in 43\% and comfort in 53\%. Twenty-two subjects experienced 32 events related to the ITB hardware or surgery. Only 12\% indicated they would not choose to undergo the procedure again. DISCUSSION: Generally, subjects and their caregivers were satisfied with the results after ITB pump implantation. A majority reported improvements in positioning, transfers, dressing, toileting/hygiene and comfort.
@article{Krach2006,
abstract = {PURPOSE: To investigate the perspective of the individual receiving intrathecal baclofen (ITB) or his/her caregiver concerning its effects and to describe characteristics of those that were satisfied or not satisfied. METHODS: After IRB approval, potential subjects were identified who had undergone ITB pump implantation at least 1 year prior to the study. One hundred subjects/caregivers were interviewed by phone. Interview consisted of a scripted questionnaire to obtain subject/caregiver opinions about changes in function and caregiver assistance, as well as satisfaction with ITB. Medical records were reviewed to collect information including diagnosis, ITB related surgeries and medications. RESULTS: Subjects ranged in age from 5-42 years and 88 had a diagnosis of cerebral palsy. Improvement was noted in the following areas: positioning 69\%, transfers 58\%, dressing 69\% and toileting/hygiene 51\%. Fifty-four per cent reported reduction in startle movements. Sleep was improved in 43\% and comfort in 53\%. Twenty-two subjects experienced 32 events related to the ITB hardware or surgery. Only 12\% indicated they would not choose to undergo the procedure again. DISCUSSION: Generally, subjects and their caregivers were satisfied with the results after ITB pump implantation. A majority reported improvements in positioning, transfers, dressing, toileting/hygiene and comfort.},
added-at = {2014-07-19T20:39:25.000+0200},
author = {Krach, L. E. and Nettleton, A. and Klempka, B.},
biburl = {https://www.bibsonomy.org/bibtex/2fab2e42fe1812075bdf261d0d001a776/ar0berts},
doi = {10.1080/13638490500138678},
groups = {public},
interhash = {40f8e556320350bdc8e38c05efbb8416},
intrahash = {fab2e42fe1812075bdf261d0d001a776},
journal = {Pediatr Rehabil},
keywords = {Adolescent; Adult; Baclofen; Cerebral Palsy; Child; Child, Preschool; Evaluation Studies; Female; Humans; Infusion Pumps, Implantable; Injections, Spinal; Male; Motor Activity; Muscle Relaxants, Central; Patient Satisfaction; Retrospective Studies},
number = 3,
pages = {210--218},
pii = {R3270H112510448R},
pmid = {17050399},
timestamp = {2014-07-19T20:39:25.000+0200},
title = {Satisfaction of individuals treated long-term with continuous infusion of intrathecal baclofen by implanted programmable pump.},
url = {http://dx.doi.org/10.1080/13638490500138678},
username = {ar0berts},
volume = 9,
year = 2006
}