Predictive testing for Huntington’s disease was introduced in the late 1980s. It was offered reluctantly, however, because of the lack of treatment available for identified gene carriers and the potential for genetic discrimination—that is, the unfair and inappropriate treatment of a person or group on the basis of genetic information. In the linked cross sectional survey (doi:10.1136/bmj.b2175), Bombard and colleagues assess the nature and prevalence of genetic discrimination in a cohort of asymptomatic genetically tested and untested people at risk for Huntington’s disease.
The 2009 Equality Bill will, if enacted, make age based discrimination in the provision of health care and social care illegal for the first time in the United Kingdom. In a speech in 2008, the then health secretary, Alan Johnson, said, "Old age is the new middle age. Health and social care services need to adapt to the changing needs of today’s older people . . . to promote health in old age and help older people to maintain independence and quality of life."
A new campaign by disability rights activists to limit the right to die launches at Westminster on Thursday. The campaign - called Not Dead Yet UK Resistance - will be asking MPs to sign a charter in support of its aims. It says that disabled and terminally ill people should enjoy the same legal protection as everyone else. Those in favour of assisted suicide argue that opposing assisted suicide will condemn terminally-ill people to suffer needlessly. The Not Dead Yet UK's charter includes a commitment to oppose any changes to existing laws which state that assisting a patient to commit suicide is illegal.
Two children in Northern Ireland whose white mother was mistakenly impregnated with sperm from South Africa labelled “Caucasian (Cape Coloured)” during in vitro fertilisation have failed in a compensation claim at the High Court in Belfast. The children’s mother, who brought the case on their behalf, claimed that their quality of life was adversely affected because they looked markedly different from their parents and had quite different skin colour from each other. She said that they were subject to “abusive and derogatory comment and hurtful name calling from other children, causing emotional upset.” But Mr Justice Gillen ruled that they had not suffered any loss or damage for which the law could compensate them.
More than 60,000 Americans were sterilised, many against their will, as part of a eugenics movement that finished in 1979, aimed at keeping the poor and mentally ill from having children. Now, decades on, one state is considering compensation.
Terminally ill patients who want to commit suicide should be able to receive medical help to die, a government adviser on care for the elderly has said. Martin Green, a dementia expert for the Department of Health, said patients who were too frail to take their own lives were being denied “choice” and “autonomy” because assisted suicide is illegal in the UK. In an interview with The Daily Telegraph, he urged ministers to review the law and suggested that a referendum or a free vote in Parliament should be called to settle policy on the issue. “If you’re going to give people ‘choice’, it should extend to whether or not they want to die,” he said.
Established under the Human Rights Commission Act 2000, the Irish Human Rights Commission (IHRC) promotes and protects the human rights of everyone in Ireland by promoting awareness and understanding, reviewing the adequacy and effectiveness of the law and by providing assistance for legal proceedings.
Être syndiqué et / ou disposer d’un mandat syndical, c’est bien souvent faire l’expérience de la répression et de la discrimination. Selon une étude du Ministère du Travail, 30% des élus syndiqués et 40% des délégués syndicaux considèrent que l’exercice de leur mandat représente un frein à leur carrière. En moyenne un délégué syndical gagne 10% de moins qu’un salarié non syndiqué ayant le même profil.
Par lettre en date du 19 octobre 2012, la ministre déléguée chargée des personnes âgées et de l'autonomie a saisi la CNCDH de la question des droits fondamentaux des personnes âgées aux plans national, européen et international.
(Assemblée plénière du 27 juin 2013)
M. Atzmueller, F. Lemmerich, B. Krause, and A. Hotho. Proc. LeGo-09: From Local Patterns to Global Models, Workshop at the 2009 European Conference on Machine Learning and Principles and Practice of Knowledge Discovery in Databases, Bled, Slovenia, (September 2009)accepted.
M. Atzmueller, F. Lemmerich, B. Krause, and A. Hotho. Proc. LeGo-09: From Local Patterns to Global Models, Workshop at the 2009 European Conference on Machine Learning and Principles and Practice of Knowledge Discovery in Databases, (2009)accepted.