Religion should be included in the vital discussions about the care people and those close to them want to receive in the last two to three days of life, according to the National Institute for Health and Care Excellence (NICE).
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Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very few people with intellectual disabilities document their wishes. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
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Unfortunately SSOTP do not plan to take library services from the SSSFT library services during 2017/18. Sadly this means that we will be discontinuing this weekly bulletin. If you are an SSSFT member of staff subscribed to this bulletin, please reply to this email letting us know what areas of the update you are interested in and we can discuss the best way of keeping you updated in this area.
The materials are a response to a survey by Age UK and the Malnutrition Task Force that shows conversations about death are taboo for many people.
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The nutritional needs of patients receiving palliative care should be routinely assessed, taking into account disease trajectory and nutrition-related symptoms. The social and emotional aspects of eating and drinking should also be acknowledged; as should the distress that weight loss and anorexia engenders in patients and their families. Practical strategies to optimise nutritional intake are discussed. Open and sensitive communication of patients’ needs and wishes is essential, especially when discussing complementary nutrition approaches. A holistic, multidisciplinary approach is key to meeting nutritional needs, and the goals of nutritional intervention should be regularly reviewed in the light of disease progression.
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Children’s hospices are a key provider of palliative care for children and young people with life-limiting and life-threatening conditions. However, despite recent policy attention to the provision of paediatric palliative care, little is known about the role of children’s hospice staff and the factors that may impact on their wellbeing at work. This study explored the rewards and challenges of working in a children’s hospice with an aim to identify staff support and development needs.
Open Access Article
Undergraduate nursing students encounter patients at the end of life during their clinical training. They need to confront dying and death under supportive circumstances in order to be prepared for similar situations in their future career.
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Macmillan Cancer Support’s census shows:
The number of new cases per specialist cancer nurse is dramatically different across the country;
A greater proportion of specialist cancer nurses being paid in lower pay bands than in 2014;
Higher vacancy rates in specialist cancer nurse and cancer support worker roles than the UK average for health and social work
The proportion of specialist cancer nurses aged over 50 has increased;
Hospice at home (HAH) services aim to enable patients to be cared for and die in their place of choice, if that is at home, and to achieve a ‘good death’. There is a considerable range of HAH services operating in England. The published evidence focuses on evaluations of individual services which vary considerably, and there is a lack of consistency in terms of the outcome measures reported. The evidence, therefore, does not provide generalisable information, so the question ‘What are the features of hospice at home service models that work, for whom, and under what circumstances?’ remains unanswered. The study aims to answer this question.
Open Access Article
To explore palliative care nurses’ attitudes, roles and concrete experience with regard to addressing sexual issues in their daily practice.. To read the full article, log in using your SSSFT NHS OpenAthens details. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Timely identifying people with intellectual disabilities in need of palliative care is important. Therefore, we developed PALLI: a screening tool for deteriorating health, indicative of a limited life expectancy. Here, we aimed to describe development of PALLI and to explore its applicability.. To read the full article, log in using your NHS OpenAthens details.
Dementia is a chronic, progressive disease that is now much more widely recognised and treated. Patients with dementia may require palliative care when they reach the end stage of their illness, or they may have mild–moderate cognitive symptoms comorbid with a life-limiting illness. The variety of presentations necessitates a highly individual approach to care planning, and patients should be encouraged to set their own goals and contribute to advanced care planning where possible. Assessment and management of distressing symptoms at the end of life can be greatly helped by a detailed knowledge of the individuals’ prior wishes, interdisciplinary communication and recognition of changes in presentation that may result from new symptoms, for example, onset of pain, nutritional deficits and infection.. To read the full article, log in using your NHS OpenAthens details.
Dignity therapy is becoming established in adult settings, with research supporting its effectiveness. This article aims to summarise and synthesise the research that has explored dignity therapy and related meaning-making interventions in palliative care with young people. To read the full article, log in using your SSOTP (legacy account) NHS OpenAthens details. MPFT - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Aim:
To investigate the association between advance care planning (ACP) and home death in patients with advanced cancer. To read the full article, log in using your MPFT NHS OpenAthens details.
The service was created as a partnership between the palliative care team and older people’s mental health services, to make sure appropriate support is provided. It’s the only one of its kind in the North West.
Gail Wilson has been instrumental in pioneering a compassionate communities initiative that uses local networks of informal carers to enable people to die in their own homes, if that is where they want to be. The initiative involves formal services working with the informal networks to deliver care to suitable patients. After a pilot in Cornwall it will be introduced in Devon. To read the full article, log in using your MPFT NHS OpenAthens details.
Young people who have learning disabilities commonly have many complex and severe life-limiting conditions that result in premature death. Too often neither they nor their family and friends are prepared for end of life situations. End of life care planning is helpful in eliciting and honouring the young person’s wishes, as far as possible. However, it can be challenging due to communication difficulties and limited understanding of the meaning of death and dying. To read the full article, log in using your MPFT NHS OpenAthens details.
The growing UK population together with demographic changes is challenging health and social care services. Health services are being reconfigured in response to this, drawing on the NHS Five Year Forward View to meet the increased demand. The 3-year review of progress outlined progress towards the intended transformations to manage growing demand while also recognising the constraints of financial sustainability. ... Importantly, planning is needed to ensure that the growing need for palliative care can be met. To read the full article, log in using your MPFT NHS OpenAthens details.