The transgenerational transmission of mental disorders is one of the most significant causes of psychiatric morbidity. Several risk factors for children of parents with mental illness (COPMI) have been identified in numerous studies and meta-analyses. SSSFT staff can use the OVID link, or you can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Families have an important role supporting a family member with problematic substance use (PSU), although this can often be challenging and confronting. Previous research has identified high rates of family aggression and violence within the context of PSU, although few studies have examined this issue from the perspective of affected family members (AFMs) supporting a member with PSU. The aims of the current Australian study were to understand AFMs’ experience of aggression and violence while supporting a member with PSU, and to explicate the strategies they used to prevent and cope with this behaviour.
Comment. Inclusion of individuals who have lived experience of a relevant medical or mental health disorder in research, policy, and service design undoubtedly enriches quality and focus. However, there are disease areas where it might be anticipated that substantial challenges could undermine the ability of patient populations to contribute a meaningful voice. Within my own field, experts by experience, sometimes called dementia advocates or ambassadors, have emerged as champions and representatives for people with dementia. The backgrounds that typically qualify a person for these roles are varied..................Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Northumberland, Tyne and Wear NHS Foundation Trust, a provider of mental health and disability services and the relationship research charity OnePlusOne, joined forces to create an interactive downloadable booklet, ‘Depression and low mood: A guide for partners’. This partnership of experts has decades of experience, which means that each section of the booklet and the accompanying videos are steeped in evidence-based research and science.
Gives people the chance to “loan out” the expertise of others by talking to “human books” about their experiences.
Doctors and ‘experts by experience’ will also give talks, while local organisations will hold stalls showcasing the support which they offer.
This paper offers a first-person account of experiencing stigma as a nurse with a mental illness.
This paper incorporates the existing literature to offer a broader cultural perspective on the experiences of a nurse with a mental illness. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The recovery process of a psychiatric patient is related to his primary informal caregiver's style of coping with stress. There is insufficient literature on validations of instruments that measure coping styles in this population. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
We sought to understand caregivers’ experience of an education-based wellness program delivered using telehealth. You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
In summary, they found that people wanted a workforce who held positive attitudes and considered the people they supported or cared for as equals. They also wanted a workforce who could support them across both a Health and Care setting, with a range of physical and mental health needs, and who could also help them develop skills to become more independent. [Link to full report]
Research and evidence from service users has consistently reported that service users are not involved in care planning, despite mental health policy that advocates a collaborative process and evidence that involvement facilitates recovery (Bee et al, 2015; Simpson et al, 2016). Service users want the care plan to go beyond being a record of clinical decisions and include aspects of their lives in which they need support, such as housing, employment and benefits.
Grundy et al (2016) looked at what ‘user-involved’ care planning might look like. They found that meaningful relationships were key to the successful involvement of service users in care planning. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The literature reporting experiences of relatives of people with mental illness regarding their interactions with mental health services identifies many commonalities. However, the actual experience of carers engaging the services and understanding health care systems remains a gap in the literature. The aim of this study was to explore the experiences of carers (of people with a severe mental illness) in a major area mental health service in Victoria Australia as they fulfil their caring role whilst negotiating support for their relative. A carer is defined as a family member or significant other who is the primary individual who provides informal care for a person with severe mental illness and may or may not be in receipt of income supplement for such a role. Specifically this study has a focus on the experience of the carer when negotiating care needs or admission with a mental health service. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; 2) To suggest the components of an intervention focused on enhancing their coping with the disease. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Empirical evidence shows that family involvement (FI) can play a pivotal role in the coping and recovery of persons with severe mental illness (SMI). Nevertheless, various studies demonstrate that FI in mental healthcare services is often not (sufficiently) realized. In order to develop more insights, this scoping review gives an overview of how various stakeholders conceptualize, perceive and experience barriers to FI. Central questions are: 1) What are the main barriers to FI reported by the different key stakeholders (i.e. the persons with SMI, their families and the professionals, and 2) What are the differences and similarities between the various stakeholders’ perspectives on these barriers.
Problems with everyday functioning are linked to reduced well-being in people with dementia (PwD) and their carers. However, previous research has almost solely investigated the performance of everyday activities, and global functioning without analysing individual activities. This study explored how deficits in initiating and performing individual activities were associated with carer burden and poorer quality of life of carers and PwD. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The Sheffield Learning Disabilities Outcome Measure (SLDOM) is routinely used across clinical services in the UK, despite not yet showing evidence of psychometric reliability or validity. However, it is reported that the SLDOM demonstrates good face validity, and represents a valuable tool for providing useful information around the parent-child relationship in the context of having a child with a Learning Disability (LD). Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Carer stress is well documented, especially in those caring for individuals with dementia. A recommendation of all national dementia strategies is to provide excellent support and information to informal carers of people with dementia. NICE guidance suggests that a range of tailored interventions, including psychological input, psychoeducation and training courses, should be offered to reduce caregiver burden and stress, although good-quality outcome-based evidence is lacking. On the basis of a narrative review of the literature, we describe individual and multicomponent carer support packages and discuss their evidence base, reflecting on outcomes for carers. Multicomponent interventions have the best evidence for effectiveness. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Parents' positive and negative feelings about their young children influence both parenting behaviour and child problem behaviour. Research has not previously examined factors that contribute to positive and negative feelings in parents of young children with developmental delay (DD). Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
To explore the information needs of parents of infants with an intellectual disability in the first year of life. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Clinical summaries are electronic health record (EHR)-generated documents given to hospitalised patients during the discharge process to review their hospital stays and inform postdischarge care. Presently, it is unclear whether clinical summaries include relevant content or whether healthcare organisations configure their EHRs to generate content in a way that promotes patient self-management after hospital discharge. We assessed clinical summaries in three relevant domains: (1) content; (2) organisation; and (3) readability, understandability and actionability. Login at top right hand side of page using your SSSFT NHS Athens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.