The public has woken up to the potential of their personal data, the Information Commissioner has said as the ICO’s annual report for 2018-19 was published today. Elizabeth Denham also said it covered an ‘unprecedented’ year for the regulator.
The ICO has today published ‘Openness by Design’, its new access to information strategy.
The strategy sets out five goals relating to the suite of access to information legislation regulated by the ICO: Freedom of Information Act (FOIA) 2000, the Environmental Information Regulations (EIR) 2004, and the Re-use of Public Sector Information Regulations 2015.
Over the past 10 years, the use of information and communication technologies (ICTs) has increased in regard to the treatment of individuals with autism spectrum disorders (ASDs). ICT support mechanisms (e.g. computers, laptops, robots) are particularly attractive and are adapted to children with ASD. In addition, ICT algorithms can offer new perspectives for clinicians, outside direct apps or gaming proposals. Here, we will focus on the use of serious games and robots because of their attractiveness and their value in working on social skills.. MPFT staff can use the OVID link, or you can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Young adults today have grown up in a society where information and communication technology (ICT) support empowerment and social participation. Young adults with mild-to-moderate intellectual disability are at risk for marginalization by the digital divide. The aim was to map and describe how municipal organizations in Sweden organize support in terms of policy and strategies to enable the use of ICT in social care for adults with a mild-to-moderate intellectual disability. You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Objectives: Information and communication technologies (ICT) developers, together with dementia experts have created several technological solutions to improve and facilitate social health and social participation and quality of life of older adults living with dementia. However, there is a need to carry out a systematic literature review that focuses on the validity and efficacy of these new technologies assessing their utility to promote ‘social health’ and ‘active ageing’ in people with dementia. Please contact the library to receive a copy of this article - http://bit.ly/1Xyazai
Letter. Understanding the mechanism of psychogenic non-epileptic seizures (PNES) is challenging. A recent review grouped currently hypothesised psychological models into four: (1) traumatic dissociation, (2) hard-wired anxious-arousal responses, (3) conversion defences and (4) conditioned behaviours, but concluded that determining which of these was correct, if any, went far beyond the available evidence.1 . To read the full article, log in using your NHS OpenAthens details.
Overall, this article highlighted the increased risk of suicide and self-harm for ICU survivors post-discharge. Several factors were identified to further exacerbate the risk of suicide and self-harm in this population.
Depressive symptoms are common among people with dementia, impacting quality of life and cognitive and functional decline. Currently, little is known about the acceptability and feasibility of psychological interventions for people with mild dementia, with recent reviews identifying the need for further evidence. Developing and evaluating psychological interventions to prevent and treat these symptoms is, therefore, an important clinical and research priority. This protocol describes a study testing the acceptability and feasibility of a manual-based behavioural activation (BA) intervention for preventing and treating depressive symptoms in people with mild dementia. The aim of this study is to explore the feasibility of conducting a pragmatic multicentre randomised controlled trial of clinical effectiveness of an eight-session intervention. The Intervention to prevent Depressive symptoms and promote well-being in EArly-stage dementia (IDEA) programme supports people with dementia and their family carers in identifying and scheduling enjoyable and meaningful activities.
Open Access Article
This paper sets out the case for why NHS England should make some bold commitments to healthy ageing in its long-term plan and suggests some ideas for actions it could take and some areas for action with others.
This report is based on a small-scale qualitative study exploring therapist and client perspectives on the therapeutic change process in home-based family therapy for children with conduct disorder. The study consisted of focus group discussions with therapists, interviews with client families and audiotaped therapy sessions. The findings suggested that home-based therapy (home visits) was effective in improving hard-to-reach clients’ access to help, resources, and opportunities, as well as the therapists’ access to invaluable information about their clients.. To read the full article, log in using your SSSFT NHS OpenAthens details. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
A cohort of 11 patients with an intellectual disability and a psychiatric diagnosis present severe behavioural disorders in psychiatric hospital of Quebec in 2009. Control-measure use for this clientele has now been reduced. How do management personnel, families and care teams explain the changes? What clinical interventions did management and care providers implement that contributed to the reduction? Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
The aim of this study was to analyse sex-specific differences in ADR-drug combinations which required hospitalisation based on two different datasets. Open access article - no login required.
Evidence on the acceptable identification and initial response to children’s exposure to intimate partner violence (IPV) from the perspectives of providers and recipients of healthcare and social services
Recent National Institute for Health and Care Excellence (NICE) guidance on sepsis1 defines clinical criteria to guide the management of a child presenting with suspected infection (table 1). In children with suspected infection, presence of a ‘high-risk’ criterion should lead to intravenous access, parenteral antibiotic administration and consideration of intravenous fluid boluses, unless a senior decision-making doctor (DMD; defined as a Specialist Trainee (ST) 4 paediatrician, or ST4 emergency physician for older children) makes an alternative diagnosis.. To read the full article, log in using your NHS OpenAthens details.
To use high-resolution imaging to characterise palindromic rheumatism (PR) and to compare the imaging pattern observed to that seen in new-onset rheumatoid arthritis (NORA).To read the full article, log in using your NHS OpenAthens details.
Perinatal depression is well recognised as a mental health condition but <50% of cases are identified by healthcare professionals in routine clinical practice. The Edinburgh Postnatal Depression Scale (EPDS) is often used to detect symptoms of postnatal depression in maternity and child services. The National Institute for Health and Care Excellence (NICE) recommends 2 ‘ultra-brief’ case-finding questions (the Whooley questions) to aid identification of depression during the perinatal period, but this recommendation was made in the absence of any validation studies in a perinatal population. Limited research exists on the acceptability of these depression case-finding instruments and the cost-effectiveness of routine screening for perinatal depression. Open Access Article
Aside from features associated with risk of neurogenetic syndromes in general (e.g., cognitive impairment), limited progress has been made in identifying phenotype-genotype relationships in autism spectrum disorder (ASD). The objective of this study was to extend work in the Simons Simplex Collection by comparing the phenotypic profiles of ASD probands with or without identified de novo loss of function mutations or copy number variants in high-confidence ASD-associated genes or loci. Login at top right hand side of page using your SSSFT NHS Athens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Alcohol misuse often develops during adolescence involving interacting factors deriving from personality, environment and life events that can be assessed with well-established instruments. However, for specific research purposes, involving the assessment of large data sets, it may be beneficial having a short tool of key items representing the most important risk factors. Journal Of The American Academy Of Child And Adolescent Psychiatry
Current approaches to stratify patients with psychiatric disorders into groups on the basis of violence risk are limited by inconsistency, variable accuracy, and unscalability. To address the need for a scalable and valid tool to assess violence risk in patients with schizophrenia spectrum or bipolar disorder, we describe the derivation of a score based on routinely collected factors and present findings from external validation......Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Objectives To identify clusters of patients who may benefit from treatment with an inhaled corticosteroid (ICS)/long-acting β2 agonist (LABA) versus LABA alone, in terms of exacerbation reduction, and to validate previously identified clusters of patients with chronic obstructive pulmonary disease (COPD) (based on diuretic use and reversibility). Open Access Article
Our primary objective was to identify cognitive behavioural therapy (CBT) delivery for people with psychosis (CBTp) using an automated method in a large electronic health record database. We also examined what proportion of service users with a diagnosis of psychosis were recorded as having received CBTp within their episode of care.
Open Access Article
The aim of this study is to examine how education affects students' identification with the social work profession. In particular, we examine the impact of students' experiences of their interactions with teachers, peers and supervisors at placement.
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Interstitial lung disease (ILD) is a frequent complication of rheumatoid arthritis (RA) that is associated with a significant increase in mortality. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Structural MRI (sMRI) increasingly offers insight into abnormalities inherent to schizophrenia. Previous machine learning applications suggest that individual classification is feasible and reliable and, however, is focused on the predictive performance of the clinical status in cross‐sectional designs, which has limited biological perspectives. Moreover, most studies depend on relatively small cohorts or single recruiting site. Finally, no study controlled for disease stage or medication's effect. These elements cast doubt on previous findings’ reproducibility.. To read the full article, log in using your MPFT NHS OpenAthens details.
Men are more reluctant than women to seek help for mood and mental health disorders. A literature search was carried out to identify barriers to help-seeking behaviour in men, the strategies they use that delay looking for assistance and the impact professionals' perceptions can have when men do seek assistance. Gender ideology and the associated beliefs men hold is the dominant barrier influencing help-seeking behaviour. Men often adopt an approach that delays the help-seeking process. Understanding this can provide an insight into the strategies often adopted by men in preference to seeking help from professionals. There is also unfortunately prevailing negativity in the perceptions of health care professionals that may have an impact on men accessing help. The article expands on these points and discusses how to apply current and evidence-based knowledge into practice. To read the full article, log in using your NHS OpenAthens details.
This review aims to identify and appraise current interventions used to identify and overcome pill aversion in adults with functional dysphagia. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Carers of patients with palliative care needs require careful assessment and support to undertake their role effectively. The carer component of palliative care is embedded in complex situations that necessarily focus on the patient. To read the full article, log in using your MPFT NHS OpenAthens details.
The findings from each of the NHS Greater Glasgow and Clyde Library Network’s eleven library sites resulted in six user typology categories: e-Ninjas, Social Scholars, Peace Seekers, Classic Clickers, Page Turners and Knowledge Tappers.
Models of service delivery for adults with an intellectual disability in Ireland increasingly focus on delivering services within local communities. Preparation for this transition often focuses on practical skills. Our service received complaints about unacceptable behaviour (i.e., shoplifting), by some service users. Although such behaviours are relatively common in the general population, we found little research on this topic related to individuals with intellectual disabilities.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Identifying wound infection can be challenging for clinicians, particularly in the chronic wound where infection may not always present itself as it does in acute wounds. The management of infected wounds can be complicated. Managing multiple symptoms and recognising these as being due to infection is not always straightforward and relies on the practitioner's knowledge and skills.
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Between-person heterogeneity of posttraumatic stress disorder (PTSD) is well established. Within-person analyses and the DSM-5 suggest that heterogeneity may also be evident within individuals across time as they move through social contexts and biological cycles. Modeling within-person symptom-level fluctuations may confirm such heterogeneity, elucidate mechanisms of disorder maintenance, and inform time- and person-specific interventions. The present study aimed to identify and predict discrete within-person disorder presentations, or symptom states, and explore group-level patterns of these states. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The prevalence of postnatal depression in fathers is likely to be close to the prevalence of postnatal depression in mothers. Beyond the detrimental consequences for the father, paternal postnatal depression negatively affects the well-being of the mother and the development of the child. Paternal postnatal depression is not commonly understood and there is a lack of assessment and support for new fathers experiencing mental health issues, but the importance of paternal mental health is increasingly recognised. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
International Journal of Behavioral Consultation and Therapy Vol. 9, Iss. 3, (2014): 11-14. DOI:10.1037/h0101634
Suicidal behaviors increase dramatically during adolescence. In order to effectively intervene and ultimately prevent suicide in youth, the field needs to be able to identify and predict which adolescents are at greatest suicide risk. However, present knowledge of risk factors for suicide and techniques for identifying at-risk youth are insufficient. The purpose of the current manuscript is to highlight some of the key, yet unanswered, questions about the prediction of suicidal behavior in youth, and to suggest the types of research advances needed to move the field forward. (PsycINFO Database Record (c) 2019 APA, all rights reserved) (Source: journal abstract). To read the full article, log in using your NHS OpenAthens details.
As the population is aging, the number of persons living with multiple chronic conditions (MCC) is expected to increase. This review seeks to answer two research questions from the perspectives of older adults with MCC, their caregivers and their health care providers (HCPs): 1) What are the health and social care needs of community-dwelling older adults with MCC and their caregivers? and 2) How do social and structural determinants of health impact these health and social care needs? You can request a copy of this article by replying to this email. Please be clear which article you are requesting.