EU leaders will press the Commission to make swift progress in the establishment of sectoral data spaces as outlined in the executive's landmark Data Strategy, draft European Council summit conclusions obtained by EURACTIV reveal.
Die EU-Kommission hat eine neue Verordnung vorgeschlagen: den “Data Governance Act” (DGA). Dieser enthält Regelungen, die mit “Datenaltruismus” überschrieben sind.
The proposal is the first of a set of measures announced in the 2020 European strategy for data. The instrument aims to foster the availability of data for use by increasing trust in data intermediaries and by strengthening data-sharing mechanisms across the EU.
An EPFL laboratory has developed Datashare Network, a decentralized search engine paired with a secure messaging system that allows investigative journalists to exchange information securely and anonymously.
The Zika in Brazil Real Time Analysis (Zibra), a project that went through six towns of the Northeast with a mobile laboratory of genomic analysis, to conduct research on molecular epidemiology of zika virus, was in Salvador on Sunday (12/06). Partnership result between Fiocruz Bahia, Evandro Chagas Institute, Ministry of Health and universities in the UK, Canada and Australia, the goal of Zibra is to expand the genomic mapping of the virus to determine the origin, genetic diversity, and epidemiological aspects, helping in combating the epidemic, during a public health emergency.
The Open Data Institute (ODI) equip, connect and inspire people around the world to innovate with data. Co-founded by Sir Tim Berners-Lee and Sir Nigel Shadbolt, the ODI provides events, training, membership and consultancy around open data.
These publications provide information about ANDS services and some fundamental issues in data-intensive research and research data management. These are not rules, prescriptions or proscriptions. They are guidelines and checklists to inform and broaden the range of possibilities for researchers, data managers, and research organisations.
The New Stack | The Touchbase Node.js application was written by Couchbase Labs as a demonstration of Couchbase 4.0’s new N1QL query features. It wasn’t specially designed for a container-native world, so we’re using Containerbuddy to allow it to fulfill our requirements for service discovery.
The growing number of digital health devices and apps presents healthcare organizations with an opportunity to use the resulting data and improve their outcomes. This requires, however, a need to build and manage integrations to acquire this data. Validic solves this challenge by providing a one-to-many connection to digital health technologies.
Validic is a cloud-based technology platform that connects patient-recorded data from digital health applications, devices and wearables to key healthcare companies like hospital
systems, providers, pharmaceutical companies, payers, health information technology platforms, health clubs and wellness companies. With access to this information, Validic’s clients can accelerate their strategic healthcare initiatives — from patient engagement and population management to care coordination, wellness programs and more.
The Open Access Directory (OAD) is a compendium of simple factual lists about open access (OA) to science and scholarship, maintained by the OA community at large. By bringing many OA-related lists together in one place, OAD makes it easier for everyone to discover them, use them for reference, and update them. The easier they are to maintain and discover, the more effectively they can spread useful, accurate information about OA.
In a pandemic, a specific vaccine will have to be rapidly produced to vaccinate people against the new virus. Such a vaccine, like all biological medical products, has to be checked for safety and efficacy (that is, does it work as claimed by the manufacturer) and approved for use. Usually this process takes several months but during a pandemic it must be done in a matter of days or at most, weeks. Countries receiving vaccine are responsible for the safety of their citizens and must make very quick decisions on whether to grant a licence, ask for more data or reject the application for a licence.
The Regulatory Capacity Building Outcome is defined as “countries with weak or no regulatory capacity will be able to regulate influenza products including vaccines, antivirals and diagnostics, and to accelerate national approval of these commodities in case of an influenza pandemic”. This Outcome is articulated across three Outputs, and seven Key Deliverables. Objectives to be achieved by 2016 will be measured against detailed global level indicators of success.
WHO’s Zika app aims to provide essential information on Zika virus disease and its suspected complications. Designed primarily for health care workers and responders, the app can also be a source of real-time information for the general public. Download and use the app is on IOS or android platforms and have easy-to-use information at your fingertips. In addition to information on on Zika virus diseases, microcephaly and other suspected complications, you can download WHO’s technical guidance and other useful resources, follow ongoing Zika related-research and development, stay updated about the latest news, and follow the international response to Zika. New content, including trainings will be added to the app in weeks to come.
Major epidemics in the 21st century highlight the need for a system to quickly transform scientific knowledge into action on the ground. Knowledge that is understandable and actionable is essential to mounting an effective response to save lives, minimize illness and to prevent unnecessary damage to societies and economies.
F. Karst, M. Li, и J. Leimeister. International Conference on Design Science Research in Information Systems and Technology (DESRIST), Pretoria, South Africa, (2023)
O. Watteler, и T. Ebel. Forschungsdatenmanagement sozialwissenschaftlicher Umfragedaten: Grundlagen und praktische Lösungen für den Umgang mit quantitativen Forschungsdaten, Barbara Budrich, Opladen Berlin Toronto, (2019)