Advance care planning (ACP) is the process of discussing and documenting wishes and preferences for future care. Research about ACP for people with intellectual disabilities (ID) is limited. This study describes what is important for ACP in the palliative phase of people with intellectual disabilities.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
Citing her own personal experiences, Amber Rudd has asked the Department for Work and Pensions (DWP) to set up an honest and in depth evaluation of how the benefits system supports people nearing the end of their life and those with severe conditions.
Death and dying can be a very difficult topic to talk about. Whether the person is in hospital or being supported to die at home, there is only one chance for the providers of care to get it right.
Healthwatch Shropshire is asking if people would be willing to share their experiences of End of Life Care in the county. For example, did they feel that the care their loved one received was what they wanted and expected? Were they treated with dignity and did they feel listened to and their wishes respected?
Nurses and certified nursing assistants (CNA) have a crucial role in 24/7 continuity of palliative care for many vulnerable patients and families, however, their perspective has been largely omitted in reported barriers to palliative care. To read the full article, log in using your MPFT NHS OpenAthens details.
Early start of palliative care improves the quality of life of eligible patients and their relatives. However, in hospital, patients who could benefit from palliative care are often not identified timely. The aim of this study is to assess how hospital-based nurses and physicians define the palliative phase, how they identify the palliative phase and what difficulties they face. Open Access Article
Few studies have specifically assessed the scope, nature and challenges of palliative and end-of-life care in rural general practice. These knowledge gaps limit the development of evidence-based policies and services for patients in the last months of life. This study aimed to explore the perspectives of general practitioners (GPs) and other stakeholders on rural GPs’ involvement and challenges in providing palliative and end-of-life care in regional Australia. Open Access Article
Advance care planning (ACP) is a process in which professionals, patients and their relatives discuss wishes and options for future care. ACP in the palliative phase reduces the chance that decisions have to be taken suddenly and can therefore improve the quality of life and death. The primary aim of this study is to explore how ACP takes place in cases of people with intellectual disabilities (ID).. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
In their clinical review, Fetherston, Rowley and Allen (2018) summarised the literature on diagnosis, assessment and management of dementia, communication and ethical issues in dementia that should guide the provision of end-of-life palliative care. They also touch on topics, such as goals of care and care homes.