Individuals with an intellectual disability are vulnerable to having end-of-life decisions made for them merely due to the presence of a disability. As a result, decisions made by others may not reflect the exact wishes of the individual. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Findings demonstrate that families hold an inherent capacity to make meaning of the death and enact family thereafter. Family relations arose as interplay of different, contradicting forces. Nurses should facilitate families’ meaning-making of the death, attend to their converging and diverging sense of loss and strengthen family caring. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Discover how Leeds Teaching Hospitals provided a tailored approach to training, in the final of a suite of case studies focused on enhancing end-of-life care.
In addition to trust-wide training opportunities, the palliative care and end-of-life care specialists offered bespoke departmental teaching and focused interventions to improve care within specific clinical areas.
Despite informal caregivers' integral role in supporting people affected by disease or disability, economic evaluations often ignore the costs and benefits experienced by this group, especially in the palliative setting. The purpose of this systematic review is to identify preference-based instruments for measuring care-related outcomes and provide guidance on the selection of instrument in palliative care economic evaluations. Open Access Article
Lwing at HM Prison Norwich is not a conventional setting for healthcare. It is home to 15 prisoners with extra and palliative care needs, including dementia and cancer. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
A team from HM Prison Norwich has received the Gold Standards Framework Quality Hallmark Award – the first national recognition of care provided to prisoners in the final months of their lives. To read the full article, log in using your NHS OpenAthens details
Learning from existing good practice examples, listening to the experiences of our staff, and feedback from our patients and families, led to production of a draft ‘same day discharge home to die pathway’. Widespread consultation was undertaken with staff across the trust.
“We recognised that there were many good examples of rapid discharges home, but this was not always consistent, particularly where same day discharges to die at home had been identified, and where prevention of delay is paramount”.