The service was created as a partnership between the palliative care team and older people’s mental health services, to make sure appropriate support is provided. It’s the only one of its kind in the North West.
Gail Wilson has been instrumental in pioneering a compassionate communities initiative that uses local networks of informal carers to enable people to die in their own homes, if that is where they want to be. The initiative involves formal services working with the informal networks to deliver care to suitable patients. After a pilot in Cornwall it will be introduced in Devon. To read the full article, log in using your MPFT NHS OpenAthens details.
Young people who have learning disabilities commonly have many complex and severe life-limiting conditions that result in premature death. Too often neither they nor their family and friends are prepared for end of life situations. End of life care planning is helpful in eliciting and honouring the young person’s wishes, as far as possible. However, it can be challenging due to communication difficulties and limited understanding of the meaning of death and dying. To read the full article, log in using your MPFT NHS OpenAthens details.
The growing UK population together with demographic changes is challenging health and social care services. Health services are being reconfigured in response to this, drawing on the NHS Five Year Forward View to meet the increased demand. The 3-year review of progress outlined progress towards the intended transformations to manage growing demand while also recognising the constraints of financial sustainability. ... Importantly, planning is needed to ensure that the growing need for palliative care can be met. To read the full article, log in using your MPFT NHS OpenAthens details.
Dystonia is a challenging neurological symptom found in paediatric palliative care (PPC).1 While well defined as a movement disorder characterised by sustained or intermittent muscle contractions associated with abnormal movement and posturing, dystonia is less well recognised and identified by clinicians.2 A wide range of therapies exist but consensus is often lacking regarding choice of treatment. No studies to date have analysed differences in management of dystonia between palliative care and neurology services.. To read the full article, log in using your NHS OpenAthens details.
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Free access. On reflection- If you ask people how they hope to die, you will usually hear two kinds of answers. Some people want to go very quickly, for example, through a sudden massive stroke, preferably in their sleep. Others would rather have a couple of years to come to terms with the prospect of death: a gradual decline from cancer, perhaps, with time to fulfil their last cherished wishes, put their affairs in order and gather their family around them for the end. I would have given the second of these answers myself in the past,......
Opioid and sedative use are common ‘active’ practices in the provision of mainstream palliative care services, and are typically distinguished from euthanasia on the basis that they do not shorten survival time. Even supposing that they did, it is often argued that they are justified and distinguished from euthanasia via appeal to Aquinas’ Doctrine of Double Effect. In this essay, I will appraise the empirical evidence regarding opioid/sedative use and survival time, and argue for a position of agnosticism. I will then argue that the Doctrine of Double Effect is a useful ethical tool but is ultimately not a sound ethical principle, and even if it were, it is unclear whether palliative opioid/sedative use satisfy its four criteria. Although this essay does not establish any definitive proofs, it aims to provide reasons to doubt—and therefore weaken—the often-claimed ethical distinction between euthanasia and palliative opioid/sedative use. . To read the full article, log in using your NHS OpenAthens details.
This literature review aimed to answer the focus question: are district nurses well placed to provide equitable end of life care (EOL) for homeless individuals? It focused on 10 primary research studies, from which two themes emerged and subsequently formed the basis of the discussion... To read the full article, log in using your MPFT NHS OpenAthens details.
To describe and explain the process of transition from cure‐focused to comfort‐focused healthcare as perceived and reported by patients, family members and healthcare providers.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
There is a lack of appropriate, validated person-centred outcome measures (PCOM) for paediatric palliative care in the scientific literature, and as a result there is not a tool to drive and evaluate care of children and young people. To read the full article, log in using your MPFT NHS OpenAthens details.
Allied health professionals aspire to become evidence-based practitioners but disparity exists between best practice and clinical practice. One example is outcome measurement; despite being committed to using outcome measures, allied health professionals struggle to use them. This study aimed to explore the process of introducing outcome measures into a practice setting. To read the full article, log in using your MPFT NHS OpenAthens details
Advance care planning (ACP) is the process of discussing and documenting wishes and preferences for future care. Research about ACP for people with intellectual disabilities (ID) is limited. This study describes what is important for ACP in the palliative phase of people with intellectual disabilities.. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.
The objective of this study was to explore nurses' perceptions of end-of-life care following the withdrawal of the Liverpool Care Pathway (LCP). To read the full article, log in using your MPFT NHS OpenAthens details.
Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitalizations at the end of life in NHR with dementia and to compare these figures to NHR without dementia. Open Access Article
What nurses in their thousands told our third annual Nursing Standard-Marie Curie poll on end of life care provision
Almost two thirds (65%) of nurses say staffing shortages are the main barrier to providing good care to dying patients, an exclusive survey by Nursing Standard and Marie Curie reveals. To read the full article, log in using your MPFT NHS OpenAthens details.
Nurses and certified nursing assistants (CNA) have a crucial role in 24/7 continuity of palliative care for many vulnerable patients and families, however, their perspective has been largely omitted in reported barriers to palliative care. To read the full article, log in using your MPFT NHS OpenAthens details.
Advance care planning (ACP) is a process in which professionals, patients and their relatives discuss wishes and options for future care. ACP in the palliative phase reduces the chance that decisions have to be taken suddenly and can therefore improve the quality of life and death. The primary aim of this study is to explore how ACP takes place in cases of people with intellectual disabilities (ID).. To read the full article, log in using your NHS Athens details. To access full-text: click “Log in/Register” (top right hand side). Click ‘Institutional Login’ then select 'OpenAthens Federation', then ‘NHS England’. Enter your Athens details to view the article.