The public event will take place in the Square in Shrewsbury from 10am–2pm on Friday 12 May 2017 and will involve the End of Life Care team from The Shrewsbury and Telford Hospital NHS Trust (SaTH), Severn Hospice, Shropshire Council, local commissioners, Shropshire Community Health NHS Trust and Shropshire Partners in Care.
It aims to make it easier for people to discuss death and dying by meeting professionals in a more relaxed environment.
Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very few people with intellectual disabilities document their wishes. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
This article consider some clinical and population level approaches to advanced care of chronic conditions and end of life care. One approach aims to follow patient values and preferences about acceptable end of life (EOL) as elicited by questionnaires. The grounds for emphasising patients’ preferences and the adequacy of the questionnaires are examined. Other approaches involve additional aims such as meeting patient and family members needs, providing information, cost effectiveness and satisfying professionals' preferences for a certain type of EOL experience. Issues raised by adding these (and other) aims are examined. To read the full article, log in using your NHS OpenAthens details.
Sadly, however, palliative and end of life care can be harder to access for those who come from black and minority ethnic communities and deprived areas; those who are homeless; those held in secure and detained settings; those who have learning disabilities; those suffering with dementia or with long term conditions. And the quality of care they receive can be poorer.
Delivering excellent end of life care is among the biggest challenges faced by nurses today, regardless of their level of experience or place of work. Just about every nurse will be confronted with a dying patient at some stage, so it is essential they have the training and resources to cope. To read the full article, log in using your NHS OpenAthens details
Neurodegenerative diseases progress slowly, creating increasing physical disability with unpredictable disease trajectories. The disease’s life-threatening nature often places these patients in palliative care. There are several factors that complicate the care of patients with neurodegenerative diseases in palliative care units. To read the full article, log in using your NHS OpenAthens details
Most staff working in intellectual disability services will be confronted with people with intellectual disabilities who need support around death, dying and bereavement. Previous studies suggest that intellectual disability staff tend to protect clients from knowing about death and avoid communication about death. The aims of this study were to gain further insight into the individual, organisational and contextual factors that affect the communication of death-related bad news to people with intellectual disabilities by intellectual disability staff and to develop guidelines for services to enable appropriate communication with clients about death and dying. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Shrewsbury and Telford Hospital NHS Trust Staff have been working hard to have a clear process for when an End of Life Care Patient wishes to get married in Hospital.
A nurse whose husband died at home is calling for the end of life helpline she staffs to be rolled out nationally.
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Religion should be included in the vital discussions about the care people and those close to them want to receive in the last two to three days of life, according to the National Institute for Health and Care Excellence (NICE).
Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
Unfortunately SSOTP do not plan to take library services from the SSSFT library services during 2017/18. Sadly this means that we will be discontinuing this weekly bulletin. If you are an SSSFT member of staff subscribed to this bulletin, please reply to this email letting us know what areas of the update you are interested in and we can discuss the best way of keeping you updated in this area.
Unfortunately SSOTP do not plan to take library services from the SSSFT library services during 2017/18. Sadly this means that we will be discontinuing this weekly bulletin. If you are an SSSFT member of staff subscribed to this bulletin, please reply to this email letting us know what areas of the update you are interested in and we can discuss the best way of keeping you updated in this area.
The materials are a response to a survey by Age UK and the Malnutrition Task Force that shows conversations about death are taboo for many people.
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The nutritional needs of patients receiving palliative care should be routinely assessed, taking into account disease trajectory and nutrition-related symptoms. The social and emotional aspects of eating and drinking should also be acknowledged; as should the distress that weight loss and anorexia engenders in patients and their families. Practical strategies to optimise nutritional intake are discussed. Open and sensitive communication of patients’ needs and wishes is essential, especially when discussing complementary nutrition approaches. A holistic, multidisciplinary approach is key to meeting nutritional needs, and the goals of nutritional intervention should be regularly reviewed in the light of disease progression.
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Children’s hospices are a key provider of palliative care for children and young people with life-limiting and life-threatening conditions. However, despite recent policy attention to the provision of paediatric palliative care, little is known about the role of children’s hospice staff and the factors that may impact on their wellbeing at work. This study explored the rewards and challenges of working in a children’s hospice with an aim to identify staff support and development needs.
Open Access Article
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Dementia is a life-limiting condition that is largely a disease of ageing. However, older people in general, and older people with dementia in particular, have not always had equal access to effective palliative and end of life care. As a result, people with dementia at the end of life often receive aggressive and burdensome interventions, or inadequate assessment and management of their symptoms. Patterns in how people with dementia experience and present symptoms as they near the end of life can indicate when the goals of care should change and a palliative approach should be adopted. To read the full article, log in using your NHS Athens