This site serves as a comprehensive, online archive of documents and history related to the Americans with Disabilities Act of 1990 (ADA) and the ADA Amendments Act of 2008 (ADAAA). Here you can find the text of the law, legislative history, congressional hearings, Supreme Court cases, federal regulations, policy and advocacy documents and additional information related to the passage of the original ADA and the ADAAA.
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Learning Disabilities Elf Blog post. In their recent paper, Kant and colleagues have focused on expanding the evidence base for efficacy of using functional analysis (FA) with children who have FXS and severely challenging behaviour.
Aim To examine whether there is a relationship between the temperament and character of university students and their attitude towards people with disabilities.
Methods The study investigated the views of nursing students in their second year of university who had elected to take a course on disability. Questionnaires were distributed to 100 people and 81 filled in the forms completely, 75 of whom (92.6%) were women. The study data were collected in January 2014. Data were analysed using the Temperament and Character Inventory (TCI) and Attitudes Toward Disabled Persons (ATDP) scale. Login using your SSSFT NHS Athens for full text. SSOTP - request a copy of the article from the library http://www.sssft.nhs.uk/library
A learning disabilities’ dementia battery was developed to assess cognitive abilities in individuals referred to the learning disabilities service because of concerns of possible dementia. The present study aimed to establish concurrent validity with previously validated measures of cognitive ability and its clinical effectiveness in detecting dementia in this population. Login using your SSSFT NHS Athens for full text. SSOTP - request a copy of the article from the library http://www.sssft.nhs.uk/library
Conclusions Women with intellectual and developmental disabilities are slightly more likely to have labour inductions and caesarean sections than women without intellectual and developmental disabilities. The elevated occurrence of these interventions is not fully explained by their pre-pregnancy health conditions or pregnancy complications. Non-medical issues should be evaluated for their influence on the timing of labour and delivery in this population. To read the full article, log in using your NHS Athens
This week we held a breakthrough Learning Disabilities Conference - Using primary care data to plan better services for people with learning disabilities - where we launched the first round of a new set of national and local information data from GPs about the health of people with learning disabilities and the care they get. The conference was a great success, generating lots of discussion among stakeholders on the new indicators and the light they shed on why this group suffer a 20 year deficit in life expectancy. The indicators should help to improve adjustments to health care and health promotion for people with learning disabilities and point to ways of reducing health inequalities for them. They are expected to play an important part in the revamped annual learning disabilities self-assessment process. There will be further publications to come from this data.
The programme and the slides from the day can be downloaded here
Following our 2015 survey it was evident that many people that use IHaL resources would like regular email updates about our work. We are anticipating sending an update every two months. These will include links to recent publications and information about forthcoming events. If you would like to receive this email then please contact us at LDT@phe.gov.uk
Little is known about the role of behavioural executive functioning (EF) skills and level of intelligence (IQ) on math abilities in children with mild to borderline intellectual disabilities. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
The Foundation for People with Learning Disabilities has launched a survey that aims to map the current hate crime initiatives around the UK. There are lots of different schemes and projects happening out there - for example, disability awareness training in schools; third party reporting sites; safe places schemes; helping people to have a circle of support and developing training to educate people with learning disabilities.
People with intellectual disability experience high rates of mental disorders and challenging behaviour, but representative data are hard to obtain for this population. Concerns have previously been raised about the difficulty this group experience in accessing quality mental health services1 and the morbidity associated with high rates of psychotropic drug prescription.2 General practitioners (GPs) are pivotal in provision of mental healthcare and representative data from this setting has the capacity to inform the epidemiology of mental disorders and the psychotropic drug burden for people with intellectual disability. To read the full article, log in using your NHS OpenAthens details
Individuals with Williams syndrome have been reported to show high levels of social interest and a desire to interact with others irrespective of their familiarity. This high social motivation, when combined with reduced intellectual capacity and a profile of atypical social behaviour, is important in terms of social vulnerability of individuals with the disorder. Therefore, social approach to unfamiliar people and the role of this behaviour within the Williams syndrome (WS) social phenotype warrant further research to inform social skills' intervention design. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
This blog looks at a recent study which aimed to examine the experiences and views of IAPT workers about providing therapy for people with learning disabilities. The authors hoped to examine therapists’ views of perceived barriers, solutions, and any relationships between therapist factors (i.e. training, experience) with their attitude and confidence when working with people with learning disabilities.
This study looks at the experience of women with learning disabilities who go for breast screening (X-ray of the breast)
Women with learning disabilities reported that there were many things that encouraged and discouraged them from going for breast screening.
Carers were very important in supporting women with learning disabilities through breast screening. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - www.sssft.nhs.uk/library
A new report from PSSRU suggests that adapted parenting programmes for people with learning disabilities might be a cost-effective way of providing support for this group. The authors – Annette Bauer (Research Fellow) and Gemma Williams (Research Officer) – discuss their findings.
Training support staff in dealing with challenging behaviour in clients with intellectual disabilities (ID) is needed. The goal of this study is to determine which elements need to be incorporated in a training on staff interactions with these clients, building upon a framework and an interpersonal model. As in functional analysis, this study tests the influence of client interpersonal behaviour, three types of staff reactions to challenging behaviour, two types of staff psychological resources and staff team climate on four styles of staff interpersonal behaviour. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - www.sssft.nhs.uk/library
The study included more than 5,000 mothers, around 1,500 of which had received some form of infertility treatment, and assessed their child’s development at three years of age.
They looked at whether there was a different effect, depending on whether it was a single or twin birth, and the type of infertility treatment given – either assisted reproductive techniques such as IVF, infertility drugs or artificial insemination.
Overall, there was no convincing evidence that infertility treatment had any effect on a child’s development.
We investigated the performance of 13 adults with mild to moderate intellectual disability (ID), relative to 13 age-matched controls, on three tasks of emotion recognition (emotion categorisation; recognition of valence; and recognition of arousal), using a number of ‘basic’ (angry and happy) and more ‘subtle’ (compassionate and critical) emotional expressions, as well as the posers face in a default relaxed (i.e. ‘neutral’) state. Importantly, the sample was drawn from a community-based initiative and was therefore representative of populations' government schemes target. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - www.sssft.nhs.uk/library
This study finds that the proportion of people being hospitalised per year is statistically, but only slightly, different among adult people with ID and the GP. The results must be interpreted in light of the organisation of the health care system in Norway. Login using your SSSFT NHS Athens for full text. SSOTP - request a copy of the article from the library http://www.sssft.nhs.uk/library
Several factors that correlate with the onset or continuation of challenging behaviour are mentioned in research. These are factors related to persons with ID, but also to direct support professionals and the context. Although many of these factors seem to affect the onset or continuation of challenging behaviour in people with ID in general, results are often inconclusive and have little focus on people with profound intellectual and multiple disabilities (PIMD). The present study aimed to assess the extent to which known factors related to challenging behaviour are also applicable to a group of 198 people with PIMD. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
Self-regulation has been found to be an important contributor to a range of outcomes, with delay of gratification (a self-regulatory skill) predicting better academic, social and personal functioning. There is some evidence that individuals with Down syndrome have difficulty with delay of gratification. We investigated the question of whether this difficulty is common to intellectual disability irrespective of aetiology, or whether it presents a particular problem for those with Down syndrome. The latter was considered a possibility because of language difficulties in this group. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
The physical activity level of older adults with intellectual disabilities (ID) is extremely low, and their fitness levels are far beneath accepted norms for older people with normal intelligence and comparable with frail older people. A physical activity programme, including an education programme, was developed for older adults with ID using behaviour change techniques. The programme aimed at improving or maintaining adequate levels of physical activity (primary outcome measure) and motor fitness, cardio respiratory fitness, morphologic and metabolic fitness, activities of daily living, cognitive functioning and depressive symptoms (secondary outcome measures). Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
We know little about the correlates of mental health problems in youth with severe and profound intellectual disability (ID), as most research includes these youth within larger samples that include greater proportions of mild and moderate disability. The purpose of the current study was to identify the child, family and psychosocial characteristics that were associated with the presence of psychiatric diagnoses and maladaptive behaviour in youth with severe ID. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
A new national plan launched by NHS England today vows to support people with learning disabilities to lead more independent lives and have greater say about the support they receive.
Under the plan, people with learning disabilities and/or autism will be given a greater say in the support they receive and the number of hospital beds for them will be halved.
NHS England has today announced a £1.75m investment in an innovative family-based initiative to help more people to be cared for in a home, not a hospital.
The Shared Lives model will support people who have needs which make it hard for them to live on their own, by carefully matching them with a carer to share their family and lives, giving care and support in the community.
People using the scheme may have learning disabilities, dementia, mental health problems or other needs which require long or short term support. It will offer them the opportunity to either live with their matched and approved Shared Lives carer, or visit them regularly for day support or overnight breaks.
People with severe or profound intellectual and motor disabilities (SPIMD) experience numerous serious physical health problems and comorbidities. Knowledge regarding the prevalence of these problems is needed in order to detect and treat them at an early stage. Data concerning these problems in individuals with SPIMD are limited. Therefore, the aim of this study was to determine the prevalence of reported physical health problems in adults with SPIMD through a review of medical records and care plans. Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
Beyond Words are a publishing company that has been creating books with and for people with learning disabilities for over 25 years. They specialise in picture-based communication.
Self-determined behaviour is composed of multiple, interrelated component elements, and yet little empirical study has researched the self-determination components other than choice making and goal setting. Also, few theoretical relationships have been drawn between the component elements of self-determined behaviour and the impact of disability category. Therefore, this study examined profiles of the combination of three self-report measures of component elements of self-determined behaviour (autonomous functioning, problem solving and internal locus of control) between two groups (ID and learning disabilities/emotional disorders). Login using your SSSFT NHS OpenAthens for full text. SSOTP - request a copy of the article from the library - http://bit.ly/1Xyazai
Reflections: We are six nursing students who recognised that people with learning disabilities, and their carers, can sometimes receive care which does not meet their needs. They also have some of the poorest health in the country. To read the full article, log in using your NHS OpenAthens details
2 June 2016: A report published today provides an overview of the number of people with learning disabilities and/or autism receiving inpatient care in hospital.
This article deals with the issue of restrictions that are placed on people with a learning disability in legally giving consent to sex. The discussion explores whether legal capacity in relation to sex is being determined on an equal basis for people with a disability, and those without, in England, Ireland and Wales.
The key issues raised are:
People with a learning disability are not able to make decisions about sex in the same way as those without.
Current legislation denies people with a learning disability the right to be decision makers.
The incompatibility of much of the relevant national laws with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) article 12 (2006).
The article proposes an alternative model of assessment which could achieve article 12 compliance whilst meeting the need to prevent sexual abuse.
Fragile X syndrome (FXS) is an x-linked genetic disorder that represents the most common hereditary cause of Intellectual Disability (ID). Very specific behavioural features (e.g. attention deficit hyperactivity disorder and stereotyped behaviour) are associated with FXS in adolescents and adults, yet research on temperament and behavioural characteristics in young children with FXS has been more limited and less conclusive. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Sharing personal experience in narrative is challenging for individuals with intellectual disabilities. The aim was to investigate the potential of Storysharing® (Storysharing is an innovative communication method based on personal narrative, which has been developed to support conversations with people who have severe difficulties in communication) intervention. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Two hundred patients from Humber NHS Foundation Trust’s Learning Disability service will be taking part in the trial of the ‘My Health Guide’ app, designed and developed by UK software firm Maldaba Ltd and inspired by the heartwarming story of “Matthew’s Book”.
“Matthew’s Book” is an iPad-based, multi-media guide that accompanies Hull-based Matthew Prosser wherever he goes. Matthew has profound and complex needs and his book allows carers and healthcare professionals to understand essential aspects of his care and what good practice means for him.
The app, commissioned and funded by NHS England and SBRI Healthcare, enables users to capture video, audio, images and text in a single, user-friendly format and share selected information with carers, guardians and health professionals.
The natural response to the intrusive bodily sensation is positional change. This study explored how children and young people (CYP) with intellectual disabilities had their comfort needs met when using adaptive positioning equipment. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
To understand issues around carer roles that affect carer involvement for people with intellectual disabilities in acute hospitals. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
My Health Guide is an app for iPads and Android tablets, as well as a web service, that puts adults with learning disabilities at the centre of their health care.
My Health Guide enables people who struggle to communicate to have a voice, and to be empowered about their health care.
It lets adults with learning disabilities capture what’s important for them and helps them manage their health care.
Families and friends can keep in touch using the web interface, and healthcare professionals can stay on top of what’s happening in the lives of learning-disabled adults.
People with an intellectual disability (ID) have complex and different patterns of healthcare needs. Poor participation in primary health care contributes to the high levels of undetected and unmanaged health issues and premature deaths of people with an ID. Limited research is available on the characteristics of people with an ID, their reasons for consulting general practitioners (GPs), and if these differ to people without an ID. Gaining such insights may provide an avenue to better understand patterns of primary care use and potential gaps in usage by people with an ID given their complex health profile compared with people without an ID. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Adjustments to meet the needs of people with learning disabilities are not implemented consistently and patients’ hospital passports are not being used, according to research conducted with 13 nurses at a conference. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
Purpose: Decades of research exist supporting various types of self-operating prompting systems, including picture, audio and video to help students with disabilities acquire skills, especially to teach life skills. While many facets of life skills are important to target for instruction for secondary students with intellectual disability, one receiving declining attention is grocery shopping. You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Mersey Care NHS Foundation Trust has completed the acquisition of Calderstones Partnership NHS Foundation Trust to establish a centre of excellence for learning disabilities.
In September 2016, the Working Together with Parents Network (WTPN -wtpn.co.uk) will be holding a series of 5 free seminars around the country to speak about updated Good Practice Guidance on working with parents with a learning disability and its role in helping to ensure that the human rights of parents with learning difficulties, and those of their children, are respected.
Both good and bad things can happen when people use the Internet, and people with learning disabilities are not using the Internet as much as other people.
Worry about the bad things that can happen online might be one reason people with learning disabilities are not supported to access the Internet as much as other people.
We wanted to find out what people without learning disabilities believe about these good and bad things for people with learning disabilities.
We wanted to find this out because the way people without disabilities think about the good and bad things online might affect how people with learning disabilities are treated.
We found out that people without learning disabilities think that both the good and bad things are more likely to happen to people with learning disabilities when they use the Internet. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Individuals with an intellectual disability are vulnerable to having end-of-life decisions made for them merely due to the presence of a disability. As a result, decisions made by others may not reflect the exact wishes of the individual. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Individuals with Williams syndrome (WS) exhibit hypersociability and may respond atypically to emotional information in social and nonsocial stimuli. It is not yet clear whether these difficulties are specific to emotional content or stimulus type. This study examined the neural processes supporting social and emotional information processing in WS. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Individuals with Williams syndrome (WS) exhibit atypical attentional characteristics when viewing faces. Although atypical configural processing of faces has been reported in WS, the relative strengths of configural and local feature information to capture visual attention in WS remains unclear. We previously demonstrated that attentional capture by target-unrelated upright faces differs depending on what response is measured. Whereas eye movements reflected subtle atypical attentional properties at the late stage of visual search, manual responses could not capture the atypical attentional profiles towards target-unrelated upright faces in individuals with WS. Here we used the same experimental paradigm to assess whether sensitivity to configural facial information is necessary for capturing attention in WS. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Although group differences have been found between children with Down syndrome (DS) and typically developing (TD) children when considering sleep problems and temperament independently, none of the research conducted to date has examined sleep-temperament associations in children with DS. The present research was conducted to determine (1) whether the sleep problems experienced by children with DS are associated with temperament or (2) if the demonstrated relations between sleep and temperament differ from those that are observed in TD children. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The purpose of this research was to examine effects of a therapeutic recreation (TR) program designed to increase executive function (EF), social skills, adaptive behaviours and well-being of adults with autism spectrum disorder (ASD) and intellectual disability (ID). Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Behavioural sleep disturbances are common among children with Down syndrome (DS). However, tools used to detect and evaluate behavioural sleep disturbances were developed for typically developing children and have not been evaluated for use among children with DS. The current study evaluates the psychometric properties of three measures of behavioural sleep disturbances that are currently being used with children with intellectual and developmental disabilities, including children with DS. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Local plans to transform care for people with a learning disability and/or autism have been published today, backed by millions of pounds of dedicated funding announced by health and care leaders.
There are often problems co-ordinating end of life care for people with learning disabilities. They are less likely to have their pain well managed and less likely to access specialist palliative care services.
This event will look at what is known about end of life care for people with learning disabilities and what can be done to improve this. Topics to be covered include pain management for people with complex needs and the difference setting makes to end of life care outcomes.
A new film that could help save lives has been launched in Lincoln and Leicester, specifically aimed at people with learning disabilities.
The thirty minute film, broken into short chapters, uses simple language and pictures to talk through the bowel scope screening process from what bowel scope screening is and why you should have it, getting ready for your test and what happens at your appointment.
It also talks about the reasons why you may not be suitable for the test and symptoms that could show you have signs of bowel cancer.
This study aimed to compare developmental courses of structural and pragmatic language skills in school-aged children with Williams syndrome (WS) and children with idiopathic intellectual disability (IID). Comparison of these language trajectories could highlight syndrome-specific developmental features. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
In the UK, the closure of ‘long-stay’ hospitals was accompanied by the development of community teams (CTs) to support people with intellectual disabilities (IDs) to live in community settings. The self-reported experiences of staff working in such teams have been neglected. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Executive function (EF) plays a critical role in academic outcomes in typically developing children, but the contribution of EF to academic performance in Down syndrome (DS) is less well understood. This study evaluated differences in early academic foundations between primary school aged children with DS and non-verbal mental-age matched typically developing (TD) children. Additionally, the contribution of EF domains to academic outcomes was evaluated in each group. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Mental Capacity Act (2005) Deprivation of Liberty Safeguards (England): 2015-16 contains summary analysis of the DoLS applications reported as having been received and/or completed by Local Authorities during the reporting year3.
Since 2009, care providers have had to seek approval from their Local Authority if they need to deprive an individual lacking capacity of their liberty, as part of their care and/or treatment4.
Today's report analyses the second full year of data since the Supreme Court judgment4 of March 2014, which led to a substantial increase in the number of DoLS applications received by councils.
The aim of this study was to verify the accuracy of anthropometric equations to estimate the body density (BD) of adults with Down syndrome (DS), and propose new regression equations. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Successful navigation is crucial to everyday life. Individuals with Williams syndrome (WS) have impaired spatial abilities. This includes a deficit in spatial navigation abilities such as learning the route from A to B. To-date, to determine whether participants attend to landmarks when learning a route, landmark recall tasks have been employed after the route learning experience. Here, we combined virtual reality and eye tracking technologies, for the first time, to measure landmark use in typically developing (TD) children and participants with WS during route-learning. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The study explored experiences of health and social care practitioners within a community learning disability team in undertaking mental capacity assessments with people with learning disabilities. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
NHS England has committed to reduce the amount of psychotropic medicines being prescribed for people with learning disabilities. Studies suggest the numbers of people with learning disabilities prescribed psychotropic medicines is far higher than numbers with documented mental health diagnoses, for which such medicines should be prescribed. This article examines the reasons why medication is prescribed, best practice, the side effects and the issues that are involved with the withdrawal of psychotropic medicines, in particular antipsychotics, in people with learning disabilities. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
Both persons with intellectual disability (ID) and persons with dementia have high disease burdens, and consequently also high health care needs. As life expectancy increases for persons with ID, the group of persons with the dual diagnosis of ID and dementia will become larger. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
The issue of forced marriage is typically located within debates on violence against women, immigration control and cultural difference and is rarely considered in relation to adults with learning disabilities. The purpose of this paper is to argue that this is an issue which needs to be addressed by Safeguarding Adult Boards. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
This study reports the experiences of developing and pre-testing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) for self-report by people with intellectual disabilities. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
The quality of life (QOL) of people with intellectual disability living in supported accommodation services is variable, influenced by many possible factors. Various frameworks have attempted to identify these factors without assigning value, direction of influence or relative impact on outcomes. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Mothers have been studied to consider how stress levels affect their engagement in therapy work that has been accessed to improve interactions with their child. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
Following a clinical recommendation by experts at the UK National Screening Committee, a new non-invasive prenatal test for Down’s, Edwards’ and Patau’s syndromes, which is safer for women and their babies, has been approved.
This additional test could reduce the number of women who choose to have an invasive diagnostic test which carries a risk of miscarriage.
Recent studies have indicated an increased risk of autism, behavioural and emotional problems and attention-deficit/hyperactivity disorder in individuals with Down syndrome. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Research suggests that staff support and interactions with people with intellectual disabilities are important for the individual's quality of life and may also influence behaviours that challenge. To date, research has focused on professionals' perceptions of the behaviours of good support staff. In contrast, this study examines the perspectives of people with intellectual disabilities and behaviour that challenges. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
People with intellectual disabilities are living longer and often experience declining mobility. Intellectual disability nurses (RNIDs) can help to ensure services are designed and equipped to meet the needs of this ageing population, writes Sophie Nelson in Learning Disability Practice. To read the full article, log in using your NHS OpenAthens details
To investigate the feasibility of a full-scale randomised controlled trial of a picture booklet to improve quality of life for people with epilepsy and learning disabilities. Open Access Article
Adapted parenting support may alleviate the high levels of parenting stress experienced by many parents with intellectual disabilities. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Scientific knowledge on the quality of caregiving/maternal sensitivity among mothers with mild intellectual disabilities (ID) is limited and subject to many methodological shortcomings, but seems to suggest that these mothers are less sensitive than mothers without intellectual disabilities. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
There is a lack of available evidence in relation to the effectiveness of interventions for adults with mild to moderate intellectual disability and mental health problems. You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Many clients in contact with social services and (mental) health care have mild to borderline intellectual disabilities (MBID). Yet, administering a full intelligence test may not be feasible. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
The Shortbreaks service provides breaks for young people with learning disabilities and associated health needs, aged between 3-18 years.
The Trust operates three short break homes two are located in Camborne and one in Liskeard.
All referrals are managed by the Cornwall Council Short Break’s Panel and are usually made by a social worker.
This resource is designed to help commissioners and providers of NHS commissioned services, create, review and sustain safe and effective specialist health services for people with a learning disability, who have a wide range of needs and varying levels of disability.
Our ambition is to make a difference to the quality and consistency with which safe and therapeutic services for people with learning disabilities are delivered.
This study aimed to compare the effectiveness of a hopping and jumping training programme (HJP) versus a sensorimotor rehabilitation programme (SRP) on postural performances in children with intellectual disability. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Many studies have evaluated the prevalence of intellectual disability (ID) by focusing on different ages during childhood and adolescence. Although the prevalence of ID is higher in older age groups, how cumulative prevalence increases, and what level it reaches before adulthood, remains unclear. Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Aim To examine and synthesise the challenges in caring for people with learning disabilities to develop a framework for making reasonable adjustments for people with learning disabilities in hospital. This framework would assist ward staff in identifying and managing the challenges of delivering person-centred, safe and effective healthcare to people with learning disabilities in this setting. To read the full article, log in using your NHS OpenAthens details
Resource lists for each topic include a list of books and E-books that the library currently stocks and a list of suggested titles.
Surveys are available for each topic, so you can vote for titles that you think the library should purchase and also suggest additional titles.
Learning disabilities affect about 1.5 million people in the UK. The prevalence of mental health problems is considerably higher for those with learning disabilities than for the general population, with estimates suggesting between 30-50% of adults are affected. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
Psychological Assessment29.4(Apr 2017): 446-457.
Few studies have investigated specific learning disabilities (SLD) identification methods based on the identification of patterns of processing strengths and weaknesses (PSW). We investigated the reliability of SLD identification decisions emanating from different achievement test batteries for 1 method to operationalize the PSW approach: the concordance/discordance model (C/DM; Hale & Fiorello, 2004). To read the full article, log in using your NHS OpenAthens details.
Examining the past reveals links with the present and enables reflection on how things have changed and what has remained the same. This article relates the story of a young woman, Gladys, who was institutionalised in the 1940s. The story is based on her case notes from a Hertfordshire institution for people with learning disabilities, although there are gaps in the records, particularly after her discharge. The names of people and places have been changed to protect their identities. The article shows how the authorities made efforts to support Gladys to live a life outside the institution, before this notion had gained wide currency and reflects on what has changed for young women with learning disabilities in the intervening years. Login using your SSSFT NHS OpenAthens details for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you requesting.
Our Specialist Learning Disabilities Service carers group meets informally every six weeks over coffee and cake. Carers can discuss topics of interest to them in a relaxed atmosphere. We have guest speakers and there is information on subjects relevant to learning disability care.
The specialist learning disability health team in Lancaster and Morecambe has teamed up with patients to ensure that they’re focusing on what matters the most when caring for people who have a learning disability.
The service held a celebration event this week to mark the ‘Making the Service Even Better’ project and to spread the word about the progress the project has allowed them to make. The event was open to staff, patients, their families and partner organisations who have been involved so far. One patient shared the fact that they have gained enough confidence through being involved that they are now setting up an advocacy group and another has taken on the challenge of running a men’s cooking group with support from his provider to help others to connect with each other and gain new skills.
Parents' positive and negative feelings about their young children influence both parenting behaviour and child problem behaviour. Research has not previously examined factors that contribute to positive and negative feelings in parents of young children with developmental delay (DD). Login using your SSSFT NHS OpenAthens for full text. SSOTP - You can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
Letter. SSSFT staff can use the OVID link, or you can request a copy of this article by replying to this email. Please ensure you are clear which article you are requesting.
This study investigates whether an intensive rehabilitation program that involves all of the areas affected in children with BIF (Movement, Cognition and Narration of emotions, MCNT) is more effective than Standard Speech Therapy (SST).
Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very few people with intellectual disabilities document their wishes. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
Autonomy support in people with intellectual disability (ID) is an important yet understudied topic. Psychometrically sound instruments are lacking. This study tested the factor structure and reliability of an instrument for assessing the extent people with intellectual disability perceive their support staff as autonomy supportive. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai
As most mental health studies of school-aged children with intellectual and developmental disabilities (IDD) are based on proxy ratings, the subjective views of these young persons are rarely explored. The present study explores experiences of well-being, mental ill-health, family, school, and peer relations in students in special education. Please contact the library to request a copy of this article - http://bit.ly/1Xyazai